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Date Posted: 22:26:40 05/06/02 Mon
Author: Susie
Author Host/IP: bgp425870bgs.union01.nj.comcast.net / 68.36.197.75
Subject: William
In reply to: William 's message, "Re: The Other Virus. I have a question. [NT]" on 21:21:11 05/06/02 Mon

I spoke to katy a few days ago and she seems alright.


Terry's response to you was the same one I would make. I could go further and say that viral load makes no difference in the severity or progression of the disease either. It is to confirm the presence of chronic HCV and to monitor treatment. It may not be perfect but it is the only thing we have. It's insignificantcy has nothing to do with the fact that it is a yardstick to measure whether one has HCV in it's chronic form.

Also, if you are PCR negative, then you did respond well to treatment. You don't need a biopsy to tell you that. Biopsy can tell if there was a histological response in someone who has not been a virological responder. I really do not think anyone is being untruthful with you. Your presumption with more virus more advanced disease is faulty at best.

As for the things that concern you, they concern me too. The only thing I have in my favor is that I acquired the virus at age 21 and I'm a female. Other than that, I am a non-responder, with cirrhosis, who has had this disease for 35 years. BUT, I am not going to borrow trouble by worrying about it. I'll worry when there is something to worry about. That does NOT mean you or I should go into denial. You need to take care of yourself, keep your doc appointments and do what they say. It's the worry that is what you have control over. The factors that make you a have a good prognosis or a poor one, you can do nothing about.

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Replies:

[> KATY HOME AGAIN -- KATY, 23:52:36 05/06/02 Mon (NoHost/12.18.106.85)

HI WILLIAM I AM HERE, WAS OUT OF TOWN TILL TODAY. WE WENT TO ILLINOIS FOR A FEW DAYS TO VISIT TIMS PARENTS, HIS MOTHER HAS PARKINSONS DISEASE, ADVANCED STAGES PLUS SHORT TERM MEMORY LOSS, HIS DAD HAS EARLY ALZHEIMERS AND THEY REFUSE TO LEAVE THEIR HOME. SO WE GO UP THERE AND RELIEVE TIMS SISTER THAT LIVES CLOSE BY, SHE HAS POWER OF ATTY OVER FINANCES FOR THEM AND LAST TIME I HEARD THEY WERE FINALLY GOING TO TURN ALL POA OVER TO HER. IT IS DIFFICULT FOR HER SO WE TRY TO BE THERE AND HELP WHEN WE GET THE CHANCE. TIM HAS A BROTHER THAT LIVES 3 HOURS AWAY BUT DOES NOT GO VISIT HIS PARENTS, THE OTHER TWO KIDS LIVE FAR AWAY, ONE IN ATLANTA, THE OTHER DENVER, SO OUT OF THE 5 KIDS MAINLY TWO OR THREE GO AND TAKE TURNS GIVING BONNIE A BREAK. THIS FAMILY REALLY NEEDS PRAYERS, THE CONDITIONS THAT DAD CHOOSES TO LIVE IN, ARE ABOMINABLE, HE IS STUBBORN AND A RETIRED MINISTER, SO YOU KNOW "HE IS RIGHT" POOR MOM GETS FED FOOD THAT HAS EXPIRED OR COMPLETELY DIED AND RETURNED IN ANOTHER FORM, TIMS DAD WILL NOT THROW ANYTHING AWAY, SO I CATCH HIM NOT LOOKING AND CLEAN THE FRIDGE OUT WHEN I AM THERE. THEY ARE FROM THE GENERATION OF WASTE NOT, WHICH IS OK BUT THERE IS A LIMIT THERE TOO. I GUESS MOM GETS HER SHARE OF PENICILLIN IN THE NATURAL FORM, LOL. GOD REALLY LOOKS OVER HER.
YOU CAN ALL GO AHEAD AND YELL AT ME, I WILL ADMIT I OVER DO WHEN THERE AND I HURT MYSELF WHILE THERE, BUT IT WAS EITHER ME OR MOM, AND DAD TOO, HE WAS TRANSFERRING HER TO HER WHEELCHAIR AND HER FEET GOT CAUGHT AS I WALKED THROUGH THE DOOR, THEY WERE BOTH FALLING, I CAUGHT THEM AND BALANCED THEMA , GOT MOM IN HER CHAIR, IT WAS AN AUTOMATIC THING, MY YEARS OF EXPERIENCE AND TRAINING JUST KICKED IN , THEY WOULD HAVE BOTH BEEN HURT AND I HAD NO TIME TO CALL FOR HELP, SO I HAVE A SHOULDER THAT IS PULLED. I AM ON LIFTING RESTRICTIONS ANYWAY BUT HAD BEEN TWO PERSON LIFTING MOM, TO GIVE DAD A BREAK HE IS 84 YEARS OLD AND MOST OF THE TIME DOES ALL OF THE LIFTING ALONE, MOM IS NOT REAL LARGE ANYMORE BUT HER LIFT IS LIKE DEAD WEIGHT AS SHE CAN RARELY DO ANY SUPPORTING ANYMORE. NOW PRAYERS FOR THEM PLEASE, GOD IS ALREADY HEALING ME AND HE PUT ME THERE FOR A REASON.
WILLIAM THANK YOU SO MUCH FOR ASKING ABOUT ME, I HAVE BEEN ASKING ABOUT YOU TOO:) HOW ARE YOU DEAR FRIEND?
I FEEL GODS LOVE EVERY DAY AND TRY TO DO SOMETHING POSITIVE THAT WILL SHOW HOW HE HAS BLESSED ME EVERYDAY. I PRAY ALL ARE WELL AND YOUR FAMILES TOO. LOVE KATY I WILL BE BACK TOMORROW , AGAPE KATY


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