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Date Posted: 21:07:24 09/18/07 Tue
Author: Leslie (Supportive)
Subject: Re: This is my story -have been off pred for 3 years now
In reply to: Anne 's message, "Re: This is my story -have been off pred for 3 years now" on 02:12:37 09/17/07 Mon

Hi Anne,
Thank you for sharing your story. I wish you didn't have to go through this but your observations are correct. Your body is trying to heal over time and with each episode. You do need to find a good doctor, I know that is easier said than done. you do need to exercise. I have seen people lose the use of the limbs they didn't exercise.I've also seen people in wheel chairs from steroid atrophy and with physical therapy
they regained use of their limbs. So please do try he exercises on the Steroid Warning Website (it is the homepage for this messageboard) amd have doctor supervise any exercisine routine. Drink plenty of water (8 glasses) a day to help reduce muscle pain and crampimg. Our nonprofit organization to provide a supportive netwok and information for the public. The problem as you discovered is very big, we are very small, but YOU are not alone, we understand and we are only a post or email away.
Best Wishes & Prayers

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