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Date Posted: 13:48:49 05/07/07 Mon
Author: Lori (Frustrated)
Subject: I've missed you all!

Howdy Everyone!

I've missed getting to be on here and visit with everyone. I've been reading all of your enteries, and just wanted to give each of you a great big hug! I can empathize with all you are going through, and my heart goes out to each and every one of you! I've been in bed, with a cast on my leg, with a torn tendon in my ankle. I didn't fall or do anything to "earn" it either. (I understand that is another one of the YUCKY side effects to Cushing's, I don't know on that one. Do any of you know about that? I know it affects the muscles and bones, but didn't know it would effect the tendons.) I will be having to spend at least 8 more weeks, mostly in bed, with this on. I'm up for a few hours each day, because staying in bed is causing more pain and problems with my knee and hips.

Please, all of you, do everything in your power to get totally off of all steroids!! I was on steroids, off and mostly on, for asthma and injuries, for over 20 years. I've been totally off them for over 12 years. The LONG-LASTING effects are horrible!!!!! One of the things I'm dealing with are kidney stones. Last year, I had to have 2 surgeries, 6 weeks apart, to get rid of them. I'm concerned that I'm getting more. Part of the Cushing's is kidney stones. The best diet to help Cushing's, is the low-carbohydrate. Being on the low-carbohydrate diet, can add to kidney stones, because of the high protein. HELP!!!!!! Can anyone give me any ideas? I'm so desperate!! I feel like I'm stuck between a rock and a hard place.

Thanks for being on here! I'm sorry you are all dealing with this, but, I sure do appreciate knowing that there is somewhere like this, that I can ask questions. For over 10 years, I was the only one that I knew of that had any form of Cushing's Syndrome, and the majority of people I know, had never heard of it, till I got it.

You are all in my thoughts and prayers.

Love and Hugs,
Lori

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