VoyForums
[ Show ]
Support VoyForums
[ Shrink ]
VoyForums Announcement: Programming and providing support for this service has been a labor of love since 1997. We are one of the few services online who values our users' privacy, and have never sold your information. We have even fought hard to defend your privacy in legal cases; however, we've done it with almost no financial support -- paying out of pocket to continue providing the service. Due to the issues imposed on us by advertisers, we also stopped hosting most ads on the forums many years ago. We hope you appreciate our efforts.

Show your support by donating any amount. (Note: We are still technically a for-profit company, so your contribution is not tax-deductible.) PayPal Acct: Feedback:

Donate to VoyForums (PayPal):

[ Login ] [ Main index ] [ Post a new message ] [ Search | Check update time | Archives: 1, 2, [3], 4, 5 ]

[ Next Thread | Previous Thread | Next Message | Previous Message ]

Date Posted: 06:57:59 05/21/02 Tue
Author: ~Di
Author Host/IP: proxy.ia4.marketscore.com / 66.119.33.167
Subject: Where do I begin?

First I want to let you all know that I read the posts and my prayers are with all requesting prayers and are always with my holas family members. I want to rejoice, although late, with the ones that had birthdays recently and to thank BL for posting since she could not send me mail, Anne for emailing my husband to check on me, mom/miki for calling to check on me and to talk to me every night and dad/steve for keeping tabs on me as well. Now for an explaination of why I have not been around. My mailbox was not messed up, just full because I have not been online in a few weeks.
I think I told y'all that I lost my katie the middle of march. I have been having lunch with her at school one day a week since she was taken from me by her mother. Her mom still refuses to even talk to me or to let me see Katie. I have missed the last two weeks of lunch with her because I sprained my left ankle and in trying to keep the weight off of it, I twisted and pulled ligaments in my right knee. I am on blood thinners and for some reason my blood was WAY too thin and I am bruised all the way up and down my right arm from bumping my elbow and the foot I sprained is bruised all the way from the toes to above the ankle, even on the bottom of my foot so I have either been in bed, at a doctor's office or in physical therapy and have not been able to be up and online. The doctor has now put me on a pain patch 24/7 for chronic pain in my lower back caused by an aneurysm in the sac that holds the spinal fluid (that is caused from the Marfan's Syndrome) and changed some other medications and I'm having trouble adjusting to all the medication changes so I stay tired feeling and sleepy. Besides that, my computer modem died right before I sprained my ankle and my puter has been in the shop. It has been out about a week but I have not been up to being online. I had planned to go to mom/miki's for my birthday but due to the fall I had to cancel and I guess it is a good thing I did because I made the mistake of asking myself what more could happen and now my car is in the shop. A part in the engine has gone bad and it will take a while to fix and a lot of money to get it out of the shop. And as if all that were not enough, Kacey (some of you have met her in holas chat and she used to post here some) called me and told me that her closest friend, Ashley, woke up screaming in pain sunday around 2 or 3AM ,was rushed to the hospital and had emergency open heart surgery. Her aorta was ripped from top to bottom and the doctors repaired it all but the damage was too much for her heart and they could not get her heart to continue to beat after the surgery. She died and will be buried Wednesday. She was just 22 years old. Kacey has been asked to deliver a eulogy.
Ashley was diagnosed 2 months ago with Marfan's Syndrome (the same disease that I have and that took the life of my best friend, Maryann, almost 3 years ago). Her two year old daughter was diagnosed and then they tested Ashley and she had it too. She was 8 months pregnant at the time so they immediately put her in the hospital, made sure the babies lungs were developed and took the baby early so that Ashley would have the stress off of her aorta. She lived a couple of months after the baby was born but then Sunday morning her aorta ripped (just like Maryann's did.) The damage done by the stress of the pregnancies and just stress of life in general had damage her aorta to the point that it could no longer remain intact. Ashley left behind 3 children under the age of three. Every time I lose a friend because of a ruptured aorta it brings back to mind that I, as well as everyone else with Marfan's, am a walking time bomb. It brings the fear and reality of the dangers of Marfan's back to mind.
I'm sorry this was so long...believe it or not, this is the reader's digest version of my last couple of months.
I want to ask that you pray for Ashley's mom, her husband, Larry and her three children, 2 year old Alyssa, 1 year old Zane and almost 2 month old, Daleigh. Also please pray for Kacey as she goes through dealing with the death of her friend and relives the pain of losing another very close friend one year ago. He committed suicide and she is still dealing with that pain also. And if you would, please remember me in your prayers. I live with the realization that my "time bomb" can go off at any moment. I love ya'll and thank you for always being there for me. *HUGS*
BTW if any of you like to give to charities and would like to know a good one to give to, you can donate to the National Marfan Foundation at 382 Main Street, Port Washington, NY 11050-3121.
And if you would like to know more about Marfan's you can call the foundation at 1-800-8Marfan and they will gladly send you literature about it. Thanks again for always being here when I need to vent or need a hug.

[ Next Thread | Previous Thread | Next Message | Previous Message ]

Replies:

Forum timezone: GMT-4
VF Version: 3.00b, ConfDB:
Before posting please read our privacy policy.
VoyForums(tm) is a Free Service from Voyager Info-Systems.
Copyright © 1998-2019 Voyager Info-Systems. All Rights Reserved.