Re: Question 3 -- MSJA Genetics

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Subject: Re: Question 3

Author:
Christa Schmidt

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Date Posted: 17:13:11 12/11/03 Thu
In reply to: Kara 's message, "Question 3" on 14:57:13 12/11/03 Thu

I agree with Kara in this situation. I think that Janet should first inform her family that she has a very high risk (50-99%) of being afflicted with Alzheimer�s. She should then make sure that her family fully understands everything about the disease and all of the risks involved with it. After everything is explained to her family, Janet should tell her children that she knows whether or not they are carriers for the Alzheimer�s gene (this information was revealed to Janet via her genetic test results). I believe that at this point, it is up to the children to decide whether or not if they want to know if they have inherited the gene. If they are not interested in knowing, they always have the option of genetic testing later on in life. However, the problem with genetic testing as Janet found out is that it reveals the genes of other family members. She now has to deal with the extra burden knowing that she was the one who passed on the gene to her children while going through the drama of finding out from the test that she is at the highest risk for getting Alzheimer�s. Genetic testing may relieve the stress of knowing whether or not you have the disease, yet it can also bring on other unwanted burdens.

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Replies:

Subject	Author	Date
Re: Question 3	Mary	20:45:39 12/14/03 Sun