Question 1 -- MSJA Genetics

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Subject: Question 1

Author:
Mary

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Date Posted: 20:20:17 12/11/03 Thu
In reply to: Sister Karen 's message, "Case Study: A Daughter's Tale" on 14:19:08 11/03/03 Mon

Janet has known about the disease her whole life and now has a better reading on what her risk is. Therefore, she can prepare herself and her family. She can decide on the living arrangements if she gets bad enough that the family cannot take care of her. For example, she can think about and discuss alternative living arrangements as well as financial planning in the event that she does develop severe Alzheimer�s disease. Also, knowing that she has a higher risk of developing it, she could make a very serious effort to live a healthy lifestyle, such as proper diet and exercise, to hopefully prevent or lessen the impact of onset. She can also confront her family when she thinks the time is right. I would hope she would prepare her husband first and then when the children reach an age where they will understand she could explain this disease to them and the test she had done and her results. She should explain to them that although she has the gene APOE and has been told that her risk is �worst case scenario,� this might not be as bad as it sounds. She will have to tell her children that they have a risk of inheriting the gene also, but would possibly not be as predisposed as she is because of their father�s genetic contribution. Given this genetic information, the children can make informed decisions about whether they want to be tested or not. They can also get counseling now so that if and when it happens they are better prepared to deal with it emotionally.

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Replies:

Subject	Author	Date
Re: response to Mary's question # 1	Liz	10:11:31 12/12/03 Fri