| Subject: Re: Question 3 |
Author:
Hud
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Date Posted: 10:58:21 12/12/03 Fri
In reply to:
Marissa LT
's message, "Question 3" on 20:10:00 12/11/03 Thu
I completely agree with Marissa's statements above. I think the children should indeed be informed about their genetic inheritance. Just like Janet, if they do not know, they will be burdened with an extraordinary amount of emotional distress and mental anguish. If they knew the results of the genetic tests, they could better equip themselves for the future. Furthermore, it would affect their future decisions- such as a life profession, marriage, and children. Armed with the appropriate knowledge, the children could make more responsible decisions about their future.
I think genetic testing should be a decision made by the patient at risk, and solely by that patient. I think that if they feel emotionally, mentally, physically, and spiritually ready for even the worst results of the tests, then they should have the tests done. Maturity obviously plays a large role in responsible decision-making and therefore, the child's age should be taken into account. If a child is too young, they should not have the test done until they are ready. If a child is incompetent of making the decision or needs guidance in their choice, then I believe it is alright for family members to intervene in this delicate process. Otherwise, I believe the decision should be an independent one.
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