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Subject: Re: Question 3


Author:
Fionna D.
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Date Posted: 15:32:12 12/14/03 Sun
In reply to: Regina 's message, "Question 3" on 16:09:42 12/11/03 Thu

I agree with Regina that Janet holds the verdict on whether to inform her children that she has given them the Alzheimer’s gene. One might think that because the children’s futures are their “property”, Janet must tell them, but Janet’s children may be very young, in which case they would not be able to handle the news that someday they may be incapable of basic function and inclined towards an early death. Janet is already having difficulty dealing with her condition; she should not have to deal with others’ probabilities as well, not until they are at least mature enough to understand, at which time a cure may develop. I do believe that either Janet or her husband is ultimately responsible for warning the children, however. If Janet finds AD significant enough that she took a test to be sure that she had inherited it, she surely finds it important enough to warn her family.
I also agree that because family members are affected by its effects, they should have a say in genetic testing, but that the tested individual should have the most say, and that the only time the family members’ judgment would override the individual should be if the individual is unable to make his decisions known, or if he is in an “unsound” condition in which his choices are completely illogical.

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Re: Question 3 AddendumFionna D.18:23:40 12/15/03 Mon



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