Question 3 -- MSJA Genetics

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Subject: Question 3

Author:
Regina

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Date Posted: 16:09:42 12/11/03 Thu
In reply to: Sister Karen 's message, "Case Study: A Daughter's Tale" on 14:19:08 11/03/03 Mon

It was not until after Janet was tested until she realized that her own children had inherited the Alzheimer's gene from her. As devastating as this may be for a parent, it is equally disheartening to the children who are now faced with the impending disease. However, Janet is also in the same position. The question of whether the children should be informed about their genetic "inheritance" is entirely up to the parent.
If I were Janet, I would explain to my children how I have a gene that means that I will get Alzheimer's Disease in future years. I would then explain to them what Alzheimer's disease is and its effects on an afflicted individual, and after fully informing them, ask them if they would ever want to know whether they had the gene, too. However, if my kids were very young, I would probably wait until an age of significant maturity before consulting them on such a decision.
I do believe family members should have a say in genetic testing because they will have to deal with its effects just like the tested individual. However, although family members have a say, the individual whose genetic testing is in question should always have the final say.

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Replies:

Subject	Author	Date
Re: response to Regina's question # 7	Liz	10:01:36 12/12/03 Fri

Re: Question 3	Fionna D.	15:32:12 12/14/03 Sun
Re: Question 3 Addendum -- Fionna D., 18:23:40 12/15/03 Mon