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>hello we lost our son at 17 weeks to a muscle disorder >called central nucli myotonic myotublar musclar >dystrophy i really can understand how you feel and >what you are going through as we had to endure 17 >weeks with our son before he finally lost his fight >for life when he died we didnt know what had caused it >spinal muscalar atrophy had been mentioned but in feb >of 2005 4 months after we lost our son we were told >what it was that he so bravley battled againsted >please feel free to email me at any time day or night >i will respond love karon
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