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Date Posted: 15:32:28 01/09/07 Tue
Author: becki (different again)
Subject: Re: Coping with colds, flu, other infections
In reply to: Susan 's message, "Re: Coping with colds, flu, other infections" on 12:10:25 01/09/07 Tue

>>I have had some infections with my weakened immune
>>system and each time I have had to increase my steroid
>>dose...but I am also asthmatic, so most of my
>>sinus/cold type infections go straight to my lungs. I
>>have been told to double my steroid dose at the first
>>sign of infection to help my adrenals cope. I had had
>>these talks with BOTH my pulmonologist and
>>rheumatologist. I trust those 2 docs to do what is
>>best for me, as they have come in to fix all the
>>damage the other docs caused by misdiagnosing me.
>
>Thanks for responding, Ivy. I'm not on any steroids
>at all, and when I asked my PCP/inf. diseases doc
>today, he didn't seem conversant with the problem. I
>have some minor opportunistic infections at the
>moment, and they're making me feel very suppressed, so
>I'm concerned about how I'd handle something like the
>flu, for instance.
>
>I wonder if anyone here is completely off steroids and
>can tell me how their body reacts to acute illnesses
>without taking steroids?
>
>Ivy, have you had allergic desensitization for asthma?
> That and a low carb diet seem to end it for a lot of
>folks, anecdotally. I developed asthma under the care
>of an allergist who resensitized me to my allergies,
>then made me sicker with a steroid inhaler. I went
>back to my old allergist for his superpotent shots and
>got complete allergy relief back within 12 weeks, and
>haven't had any asthma since.
>
>Susan



Leave it to me to be different again. the mega doses of steroids I had to take so i could breathe really screwed my immune system. I dealt with the thrush and regular infections then moved on to the big time. I got 3 different infectios in my lung: aspergillis(mold), MRSA, and entrobacter. I almost died from my cure; not my asthma. I lost half a lung part of 2 vertabrae,and a disc in my back. I broke my arm last year and instead of the bone healing it dissolved(thank you,prednisone). A month after reconstruction I got an infection in the incision from the normal flora on your skin. I have been forbidden by my drs. to even get a cold because it would flare my asthma. I can't take anymore oral or IV steroids because of the permanent damage they've done. One day I'll be faced with the decision of not breathing or taking my chances on the next lost body part from steroids. My case is unusual. Most people don't have all this happen to them. My drs tell me 1)I'm weird,unique,and thank God, one of a kind. 2) I am a living, walking miracle. I'm telling you this to remind you that steroids are not always the answer for all cases(no matter what the drs say)They can bring big trouble with them for all the good they do. Consider all your options when making any decision about steroids.
becki

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