my day, etc -- NSYNC Skeedettes

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Date Posted: 17:32:12 05/07/01 Mon
Author: A-Skee
Subject: my day, etc

First off, J-Skee I am glad you got your gift! We got it cause it did fit with how we met and have a friendship. We knew that was the right one when we saw it.

The past few days/weeks it seems that my bag/pump has been giving me WAY too much med and hardly any at all. So this is prob why I have been so sleepy is cause I am getting a huge dose. Also I will wake up at night and feel like I am going through withdrawls which is, we now know, cause I am not getting enough. Yesterday our bag had enough med to get me through tomarrow and it ran out this morning. So since we were on our way to Stanford we drove to Coram(home health care) and had to wait for them to get there (we had no other bag)then my presciption ran out, my doc is in Illions(sp) so they gave us a emergency bag, lol

The doc wasn't much better. I saw my doc today. It was frusterating as always. They down play every thing and they refuse to let me go up on Cellcept. We think it is working cause they lowerd it and it felt AWFUL but they say I am at the max I can go. Then the evil nurse was all "Who is your pain doc? I want to talk to them about when you are getting off that??" I said, I'm not, it works, this is the first thing in 6 years that has helped my pain. Plus my hip has been hurting and of course the resident person has to move it all around, and then the doc wants to too. I was crying it hurt so much. The evil nurse had a hissy fit that I was in my wheelchair.

We have to make sure this new thing we are doing to the pump/iv bag works since I am flying to VT next week. Mom is still having a hard time with her mom's death. Dad's mom is about to die. They are both down, for more reasons that that. Which I am too but diffrent reason them then.but such is life. I should be around, unless I start feeling worse,

Anna

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Opps. Forgot to say that i am glad things are kinda ok with the guy thing. I also agree that waiting out a little is good, even though it might be hard to just wait, lol (NT) -- A, 17:35:08 05/07/01 Mon