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Friday, January 02, 18:02:32Login ] [ Main index ] [ Post a new message ] [ Search | Check update time | Archives: [1]234567 ]
Subject: NEW PLAN OF ATTACK


Author:
Stacy
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Date Posted: 15:29:02 06/23/06 Fri

Mom took me to my follow-up examination. Since my chest pain level is better he wants to wean me off the Morphine. I will be going from two 30 mg tablets per to two 15 mg per day. YEA baby!! I will be able to drive again. As for the chemo, he is changing it to VP 16-213 (Etopside) and Carboplatin starting Monday June 26th. The rounds are in 21 day cycles again. Carboplatin is very hard on the WBC's, RBC’S, causes nausea, and hair loss. The Etopside is one of the very few chemo drugs that can make it through the brain barrier.

The Gamma Knife procedure is out of the question. If it were one mass and it was in the exact same place as last time, we could do it thinking that it did not complete the job. Doing radiation or Gamma Knife on multiple areas would be like chasing our tails by not knowing where it is going to hit next. Two out of the three are growing. That is why we are trying the Etopside. 11:15am blood pressure = 100/68 pulse = 72. Two out of the three in my brain are still growing so hopefully the Etopside helps!

Day 1 = I will get Etopside (VP16-213)=180 ml IV and Carboplatin 720 mg's

Day 2 = I will get Etopside (VP16-213)=180 ml IV

Day 3 = Etopside (VP16-213)=180 ml IV

Day 4 = I will get a shot of Neulasta to improve my white blood cells (WBC'S)

Day 8 = Start taking Levaquin antibiotic for 7 days. Start taking temperature every 4 hours. If 100.0 or above call Dr. Hahn.

Day 10 = I will have blood work taken to check CBC’s.

Day 21 = See the doctor and start another round.

Last edited by author: Tue June 27, 2006 17:25:58   Edited 2 times.


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Replies:
[> Subject: Response


Author:
Tracey
[ Edit | View ]

Date Posted: 17:31:25 06/23/06 Fri

Stacy,
I think I am going to start calling you Dr. Preston. And instead of Dr. Hahn receiving billing from the insurance company, I think you should take your fair share. You impress me with all of your knowledge. I don't know how you keep it straight.
Good Luck with the VP-1 and carbo on Monday.
I will be thinking of you-as always. Tracey
[> [> Subject: GREAT TO SEE YOU


Author:
Stacy
[ Edit | View ]

Date Posted: 12:16:12 06/24/06 Sat

Hi Tracey! It was great to see you at the Relay for Life. Sorry I couldn't stay for the illuminary lighting. But I had a good reason to leave. Huh!?!?!

That's funny!! I'd like a fair share too. It's easy to learn when you have nurses like you and Jeanette that allow me to learn. You'll answer all my questions and deal with my whims. And plus I just "get it". The body and how it works makes sense to me. Dr. Preston's prescription is just keep me here long enough to learn every bit I can. But it doesn't all have to be by experience LOL!!!!!!!


[> Subject: Thinking of you


Author:
Bonnie Bain
[ Edit | View ]

Date Posted: 18:50:31 06/23/06 Fri

Hey Chickie,
You know I love ya girlfriend and have you in my thoughts and prayers. Next tuesday I'm having a revisional operation on my right arm...so I'll be around and will hopefully catch you at home when I'm better. I've been doing some consulting work ...nice to be needed.

You are an awesome person and quite a fighter...I admire you...so does Addy who is helping me type!

Love
Bonnie
[> [> Subject: SAY HI TO ADDY


Author:
Stacy
[ Edit | View ]

Date Posted: 12:22:34 06/24/06 Sat

I still gotta get there to meet the (half-grown by now I'm sure) kitten. Good luck with your surgery.

I'm not really looking forward to starting this new chemo from what I'm hearing about it but hey, if it helps......

What kind of consulting work?


[> Subject: hey stacy


Author:
Karen
[ Edit | View ]

Date Posted: 21:57:46 06/23/06 Fri

I'm sorry to hear the latest about your scans. But if anyone can beat this YOU CAN. I do have to correct you though. The carbo is on the first day and the vp-16 is for 3 days. I don't know if you have ever tried sea-bancs for nausea. You wear them on your wrist. People use them when they go on ships for seasickness. It's always worth a try. It works for some of my patients. I still find you amazing. Just know you are always in my thoughts and prayers. I haven't forgotten you and your mom and I are supposed to go out for crabs one day. Bet you thought I forgot about that. Just cause I left Good Sam doesn't mean I forgot you. Hang in there. I love your web site. You still are the poster child for coursage and strength. Hang in There. Love ya
[> [> Subject: HEY KAREN


Author:
Stacy
[ Edit | View ]

Date Posted: 00:02:51 06/24/06 Sat

I always love to hear from you even though it's rare. I remember about the crabs... just get on Mom about it. I know she'd love to see you AND have crabs!!

I could have sworn the script was written the way I wrote it above. I actually copied it from the script. Maybe he's trying something different with me. I'll have to check that out.

I've never heard of the sea-bands but I've also never needed them. The AC treatment was the only one I actually needed extra anti-nauseau drugs for. But I'll keep them in mind just in case. Thanks for the heads up!!

[> [> [> Subject: DARE I QUESTION MY NURSE


Author:
Stacy
[ Edit | View ]

Date Posted: 05:10:32 06/26/06 Mon

Hey Karen, I was re-reading what I copied from Dr. Hahns' script. You are right, I will be getting the Etopside for three days and the Carboplatin just the first day with the Etopside. I missed the "x3" part next to the Etopside. Thanks for bringing my attention to my error. I don't like giving false information about my care and treatment. Sure do miss you!!

[> Subject: Good Luck


Author:
Peg
[ Edit | View ]

Date Posted: 07:57:36 06/24/06 Sat

Sounds like the side effects are not going to be fun, but I think the aggressive treatment is a good thing, especially if it can have an effect in your brain. Hang in there and let us know if there's anything we can do to help. And a special thanks for keeping all your friends who love you up to date on what's going on.
Love, Peg (and Jerry)

[> Subject: casey-jones...


Author:
Anthony
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Date Posted: 11:59:40 06/25/06 Sun

HI, I am checking in on you daily, sorry I do not get back to you more, Guess I am getting old. I know that the Lord is with you all the time watching and protecting. We do not know why things are the way they are but we sure can trust in Jesus. I know there are many prayers for you every day, and the most I can do is say that I know His will be done. With someone like you showing haw brave you are and being an example to many others, thank you so much... Love Ya Casey-Jones...GBY
[> [> Subject: HI UNCLE ANTHONY


Author:
Casey Jones
[ Edit | View ]

Date Posted: 08:34:34 06/26/06 Mon

I believe I'm only as brave as I am because of Jesus. I know He has many Angels on my shoulders around the clock. I have complete faith in Him and my life is in His hands. I hope His will is a miracle for me though!



[> Subject: greetings


Author:
Mary White
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Date Posted: 08:40:16 06/26/06 Mon

Hi Stacy,
I wish you the best that God has to offer. I know these treatments are difficult to get through but whatever helps is worth doing. I know you have the strength to see it through. Keep going. My prayers are going out for you every day.

Mary

[> Subject: CORRECTED


Author:
Stacy
[ Edit | View ]

Date Posted: 17:33:09 06/27/06 Tue

EVEN THOUGH I STATED IT ABOVE THAT MY X-NURSE, KAREN, WAS CORRECT ABOUT THE DRUGS I GET ON WHICH DAYS.... I WANTED TO CORRECT IT IN THE TOP SECTION ALSO IN CASE IT'S THE ONLY PART THAT IS READ BY OTHERS.

KAREN AND TRACEY WERE MY NURSES FOR MY FIRST ROUND OF BREAST CANCER IN 1999.

THIS IS MY "GRADUATION" PICTURE FROM CHEMO ON 12-23-99. FROM LEFT TO RIGHT...

KAREN, ME, TRACEY, MOM


THANKS AGAIN KAREN FOR THE HEADS UP.

I GOT ATIVAN AS AN ANTI-NAUSEA DRUG, ANZAMET, FOR ANTI-NAUSEA, AND DECADRON AS PRE-MEDS. I LIKE THAT ATIVAN!!! MADE ME SLEEP THROUGH THE WHOLE THING AND GET A GREAT NIGHTS SLEEP!!

Last edited by author: Tue June 27, 2006 20:50:21   Edited 1 time.

[> [> Subject: SLEEEEEEEEEEEEEEEP!


Author:
Mark
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Date Posted: 18:29:11 06/27/06 Tue

Glad to hear you got some sleep! I know sleep,or at least sleep for more than a couple hours at a time has been rough for you.Feels great to get a good nights sleep,I hope you sleep 8-10 hours without any wake ups!
Glad to hear your appetite is coming back too!
[> [> [> Subject: SLEEP


Author:
Stacy
[ Edit | View ]

Date Posted: 21:00:57 06/27/06 Tue

Yea, that drug Ativan that they gave me is a wonderful sleeping pill. And you're out cold while you're asleep.

My nurse, Vicki, told me that I had such an appetite yesterday because of the steroid Decadron. I told her that Decadron has never increased my appetite before. She said I never got that high of a dose. But she was still surprised I had an appetite. Most people get nauseaus from the Carboplatin. But I could still feel sick within the next few days from it. Hopefully that won't happen.

I stopped taking the Morphine last night. This is the first day without any sooooo expect to be seeing me up there again soon in the wagon.

Last edited by author: Tue June 27, 2006 22:12:45   Edited 1 time.


[> Subject: STACY!


Author:
Cliff
[ Edit | View ]

Date Posted: 23:05:30 06/29/06 Thu

Hey Stacy! Just thought I'd say hello, to make sure you haven't forgotten me. Are we still getting married next weekend?
[> [> Subject: SORRY DEAR


Author:
Stacy
[ Edit | View ]

Date Posted: 08:15:44 06/30/06 Fri

After thinking it over, I just can't do it. Sorry Hun!

But have a great birthday on the 4th anyway!!




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