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Thursday, May 23, 15:23:51 [ Login ] [ Main index ] [ Post a new message ] [ Search | Check update time | Archives: 1, [2], 3, 4, 5, 6, 7 ]
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Subject: Life such as it is........


Author:
Sylvia Coleman
[ Edit | View ]
Date Posted: 14:36:05 06/22/06 Thu
Hi there
The girls said you were in the ccn room other day so I am just posting to you and letting you know I was glad you were in and so on.
I am sorry to see you are continuing with chemo and I know you have no choice.
Did you say you were loosing hair still?
As I thought you did not after awhile cause the chemo is not such that that hapopens.
I am gonna have a bone scan in the coming days as I have a severe sore neck and lt shouldier arm and underarm and back and so the doc Dr Ellard (Susan ) thinks I need one and so its a worry .........
We do so need a cure and Breast cancer is a solid cancer I am told making it harder to treat in advanced stages.
Well God bless you and give u many more years and so on.
All the best my bosom friend,
Sylvia (Nursie19711)
[> Subject: HI SYLVIA


Author:
Stacy
[ Edit | View ]
Date Posted: 09:21:45 01/20/06 Fri
It's wonderful that you checked in. I would have liked to have seen you in CCN as well.

Yes I am still losing my hair. This will make the 4th time. It hasn't started yet this time but they are sure it will since the drug is in the Taxol family.

I sure hope your bone scan goes well. I'll pray for you.

It was great to hear from you. Please stop in again!!
[> [> Subject: a little late but better than not at all


Author:
Sylvia/Nursie19711
[ Edit | View ]
Date Posted: 01:33:17 03/06/06 Mon
Hi there and so glad to see your link here at CCN and you may not see me post but you are in my thoughts.
Wow time goes fast was overlooking some of your posts girl and you have been through hell almost at times I am amazed at your faith in God and its a privelege for me to chat with someone like you who is also a believer in God and I know sometimes we wonder where God is and for a good reason ........
Now are you a her_2 receptor as I forget all I can see is this seems to be an aggressive cancer but pray a mircle comes to you as I am gonna say a prayer for you when I am finished and as I am here talking to you I am believing for you and the peace of God that passes all understanding be your strength today..
So far my tests are doing ok its mostly the arthritis thats a genuine pain.
I see the rheumy on march 16 and just had a scan to look for osteoperosis which I forget what thats called ...gosh so brain dead at times ........
My little grand kids were here last weekend and the joy of my life and came home after dropping them off to a pc that did not work.........boo-hoo lol but my son has been here this weekend and once again I am back on......
Grandkids will be back on the 16 th as well for a week of spring break........ .yey so lots of swimming lol
I was away yesterday to a place called Langley BC (its about 120 miles round trip) to see my older sister as she has a knee infection and its not been healing she also needs a miracle its been 6 mons after the knee replacement
and not healing .......my younger sis and I went and made her comfortable and helped with getting her up to the bathroom and then to the chair and so one and nurses were checking and were pleased to see she was in the chair and with out their help as they can get busy well... was sis with rheumatoid arthritis helping me and me and my cane lol but we did it and then after many hrs we returned her to bed and made her comfortable there I am imagining that she fell to sleep which was a needy thing at that point and thankful we helped her somewhat and thats needed more ofter for those who can to help one another and it helps make a person realize we have much to be thankful for and also we realize and spread the love of God a little beyond our borders ...........
Well dear please know you will remain in my prayers and thoughts and may God bless and keep you and may you have a miracle and shock ppl in your part of the world.............sending you my support and love .
Sylvia from BC canada (also known as Nursie19711)
[> [> [> Subject: oops


Author:
Sylvia/Nursie19711
[ Edit | View ]
Date Posted: 01:36:47 03/06/06 Mon
not a 120 mile round its each way or more lol .........
[> [> [> [> Subject: HEY NURSIE


Author:
Stacy
[ Edit | View ]
Date Posted: 08:09:07 03/08/06 Wed
Sounds like you've been quite busy!! Sure hope everythings starts feeling better for you!

I'm off chemo this week. YEA!! Start up again with the 2nd round of this drug next week.

Thanks for thinking of me and keeping me in your prayers. I do the same for you. Great to hear from you!!
[> Subject: breast cancer help!!!


Author:
Amy VanCleef
[ Edit | View ]
Date Posted: 07:24:32 06/22/06 Thu
My mom is a fighter and very strong this last week has been hard since we brought her home on hospic, she is only 53 and been fighting for years.. she isn't ready to die and we arent either. She is confused from all the pain meds she is on. is has mestasixed to part of her bones, limpnodes, liver and she has fluid build up around her lungs making it hard for her to breathe... Is there a mircle cure...the doctors cant do anymore...It is in God's hands now.. but I want to make sure I dont leave any rock unturned...
PS she also has a problem swallowing big pills.

Amy
[> [> Subject: Hi Amy


Author:
cautious2day aka Stacy
[ Edit | View ]
Date Posted: 14:36:05 06/22/06 Thu
Just remember ---- she has always been in God's hands. It's the devil wearing you down, don't satisy him.

Have you tried "CANCER TREATMENT CENTERS OF AMERICA"? This is the main link to it: (you'll probably have to cut and paste the link.)

http://www.cancercenter.com/

I keep them in the back of my mind. They have cured people that were given up on.

I have also heard good things about the doctors in Greece. A friend of mines wife had cancer. Since she was originally from Greece she was eager to try it. So she went to Greece, was treated, never lost her hair, and has never had any problems since then.

Try cutting the pills in halves or in quarters. If they are time release don't break them without checking with her doctor first.

Also at the top of my web page, there is a link to a book called "JOURNEY THROUGH LOVING EYES. You may get some comfort from the book. There is a charge for the book but I in no way make any money for advertising. Al, the author, is a friend of mine.

Hope that info helps in some way.

Stacy

Last edited by author: Thu June 22, 2006 14:38:28   Edited 1 time.

Subject: Hello Little Sister!


Author:
Mark
[ Edit | View ]
Date Posted: 06:56:39 06/22/06 Thu
Just stopping in to check on you.Good luck with the results tomorrow!Hopefully you'll get some better news this time.
I'll be glad when you can stop taking all of those meds.
I know the meds are hard on you right now,and I hate that for you!Stay strong & keep fighting this,you are stronger than you know!
I love you!
[> Subject: HELLO BIG BROTHER!


Author:
Stacy
[ Edit | View ]
Date Posted: 06:56:39 06/22/06 Thu
Thanks for the good luck wish for today. I always get nervous when I have to hear results about my brain! I'm nervous to hear if I have to get the Gamma Knife too.

I'd like to be able to be a bit brighter in that crayon box. I'm only taking one of the Morphines now. It's the slow release one that I take once every twelve hours. So I get a "hit" of it every few hours.

As for the liquid morphine that I take every 3 hours I don't have to drink it anyore if I don't to want to anymore. And I don't want to.

My short term memory is getting worse. I can't remember who I say what to and if I said anything at all. My tremors are back. And so is the "nodding off". All that may be because I was taking 2 kinds of morphine everyday since June 18th.

I sure miss driving that wagon.

Thanks for checking in on me and wishing me well. It always makes my day when you check on me!

I love you too!

Last edited by author: Thu June 22, 2006 07:04:46   Edited 1 time.

Subject: ANOTHER SETBACK


Author:
Stacy
[ Edit | View ]
Date Posted: 09:27:55 06/21/06 Wed
Bad chest pains woke me up Saturday morning. They continued to be there and got worse throughout the day. Everything I did made the pain worse. Nothing relieved it. Just taking five steps was painful. When I would bend over forward the pain got a lot worse and radiated up the left side of my next into my jaw and even two left molars.

Saturday evening was the Relay for Life where I was to be the motivational speaker and I did not want to miss that. Being bull-headed, I did not call the doctor. Plus I knew I had a CT scan Monday to check the progress of the chemo. I really enjoyed being the speaker and I am glad I went.

TRACEY AND ME (she asked me to be the speaker


ME CHECKING MY NOTES


GIVING MY SPEECH


ME AND MOM


When I woke up Sunday, I felt a little better so I went ahead and went shopping with my Mom and Aunt Nancy. As the day progressed the pain worsened. When we finally got home, my Mom vacuumed the living room and dining room then she was going to leave. I asked her to stay because the pain was bad enough at that point I wanted to call my doctor. Dr. Hahn was not on call but one of his associates was. She told me to go to the Emergency Room. It may have been my heart, a blood clot in my lungs, or maybe even the current blood clot in the Superior Vena Cava moving, or any of a number of other things. Therefore, I asked my Mom to take me so she did. Throughout the weekend, I had several tests. Lots of blood work, a chest x-ray, an EKG, and a CT scan with dye (even though I am allergic to the CT scan dye. They did a great job of pre-medicating me so I did not have any problems.

They put me on two different kinds of Morphine for pain. One I can take every three hours as needed and the other one is stronger and is slow-releasing. I am to take that every twelve hours whether I feel I need it or not.

I did not get hardly any rest while I was there because of pain plus there was an 80-something year old woman down the hall that would scream all night long and part of the day. She has dementia but was there for an infection. She about drove me and everyone else nuts.

The blood-work came back showing no signs of heart attack enzymes but I am anemic from the chemo. The x-ray did not show any fractures and the EKG came back normal.

My doctor, Dr. Hahn, came to see me twice and released me at noon today. Mom and I ran around to different places to get my prescriptions filled. One place was Good Samaritan. We found out my pharmacy only has one of the Morphines. Knowing I had been getting the other one while I was admitted I went back to get it refilled. I stopped in to see Jeanette, my chemo nurse. Dr. Hahn saw me there and asked me to come into his office.

Dr. Hahn needed to tell me that the CT scan came back with bad news. The good news was that the pain had nothing to do with my heart. My heart is fine. However, the cancer is all growing again and the doctor thinks it is the cancer growing causing the pain. I will be changing chemo drugs again. He wants to see me on June 22nd for a follow-up and to set up scheduling of the new drugs. Again it’s two drugs but this time I will go three times a week then go back every 21 days to start the regiment again. I will have better details after I see him on the 22nd.

Last edited by author: Wed June 14, 2006 05:21:47   Edited 2 times.

[> Subject: Cheering for YOU


Author:
Donna
[ Edit | View ]
Date Posted: 08:58:06 06/14/06 Wed
Keeping you in my prayers Stacy -
just jump up and smack it again :)

(BTW...I know it's been a few weeks, but wanted to tell you that I'm so glad you stopped at Moms - was great to see and talk with you)

Take care
[> [> Subject: HI DONNA


Author:
Stacy
[ Edit | View ]
Date Posted: 09:40:02 06/14/06 Wed
Hey Donna, it was great to see you again also. We'll all have to get together again for dinner sometime soon. Tell Slim hello for me.

Thank you for the prayers. I'm really in need of them these days.
[> Subject: Hang in there


Author:
Connie
[ Edit | View ]
Date Posted: 12:41:43 06/17/06 Sat
Oh my, you have had some more trying times. It sure did sound like you were having heart problems when I was reading through your message. In the first paragraph I said to myself, "She is having a heart attack!" Then continued to read that you were able to go to the relay. I sure looks like you moved people. Can see Tracy upset. I wish I could 'hear' your story instead of having to read about it. You have given me hope. I did say "oh @##$%." when i read on about your CT results. Its like, haven't you been through enough.
One the new routine of chemo, will you have to stay at the hospital for the three days?
I keep thinking I will be like you in a few years because of my similarity to you. However----- You would have to put me on morphine to even think about speaking in front of peope. Oh my gosh. haaaa haaaa haaaa How can you do it???? But It sure did look like you made in impact.
You will have to let us know more about what type of chemo, how long it takes for the procedure, etc. when you find out.
I'm trying to send you little angels to help you along.

On another note, I am still working 8-1 everyday as an office assistant] But this week, I learned how to put on a control module, fuel pump, and fuel filter on my husband's pickup. I watched how he got them off, and then I proceeded to put new ones back on. I may be getting older, but I am still learning. So who said, you can't teach an old dog new tricks. haaa haaa

I will still be thinking of you.
Connie
[> [> Subject: STILL HANGIN'


Author:
cautious2day
[ Edit | View ]
Date Posted: 09:27:55 06/21/06 Wed
The ONLY reason that I didn't call the doctor sooner is because of the American Cancer Society's Relay for life. I was asked by someone very special to me (Tracey) to speak. I couldn't say no or change my special plans by going to a hospital for myself. I figured I could go that night if I had to. I know, I know, I heard it a hundred times that I should have gone sooner. Why bother when they can't get your treatment right, they can't decide which tests to run and worst of the ER doctor was reading someone else's bloodwork thinking it's yours to my face. It's a good thing I ALWAYS ask for my blood work. When I started reading the results I started noticing incorrect information. Like they had me down for reason for visit as "asthma" nothing about chest pain. Then my social security number and phone number were wrong. Fortunately I got my nurse that I've had before in chemo. He's a rotating nurse that goes where he's needed. When I was in triage I specifcally requested Martin if he was there. Thank God he was. I showed him the the blood work. Guess we'll have to start over with you., he said.

Yes, sometimes I definitely feel like I've been through enough. It's just making me stronger, right. I miss going to the doctors office and hearing ONLY good news. I'm glad to hear good news even if I have to bad news along with it. But I'd really like to hear good news.

Tracey and numerous others told me I brought tears to their eyes. I was proud of that. I wasn't expecting the feedback that I got especially since I didn't remember to say one of the most important things on the list. The speaking part was the easiest part for me. I had to host a lot of training sessions, meetings, refresher training when I worked. I used to be scared to death. As long as I know the subject matter, I'm okay with it.

Yes, sometimes I definitely feel like I've been through enough. It's just making me stronger, right. I miss going to the doctors office and hearing ONLY good news. I'm glad to hear good news even if I have to bad news along with it. But I'd really like to hear good news. I see Dr. Hahn this Thursday, June 22nd to see what's going on with the new masses in my brain. I guess I'll find out if he wants to send me to go talk to a guy at John's Hopkins Hospital to talk about the Gamma Knife procecure. I'm sure we will also discuss the process for the next two drugs I'll on.

Sorry for writing a book here. But I haven't talked to you for a while and wanted to catch up.

Last edited by author: Wed June 21, 2006 09:38:59   Edited 1 time.

[> Subject: Hi Stacy


Author:
Cliff
[ Edit | View ]
Date Posted: 23:06:30 06/19/06 Mon
Geez, I hate hearing lesss-than-good news from you. It reminds me of a guy out in the ocean, fishing for marlin. He hooks one, and fights it, and almost has it to the boat when it makes another run. So he has to fight it back to the boat again. But if he has good equipment, and he doesn't give up, he'll eventually win the fight.

So are you getting your wagon out very often?
Subject: YOU ARE AMAZING


Author:
Karen Haughey
[ Edit | View ]
Date Posted: 20:20:35 06/18/06 Sun
Well, I tried writing here a few minutes ago and I think I lost my message. So, I'll try again. Just want you to know that I miss being one of your nurses. I keep track of you on this web site. I think it's great!!! You should be the poster child for courage, strength and how to live your life to the fullest. You are amazing. Hang in there and continue to KICK ASS! YOU ROCK!!!!!!11
Subject: greetings again


Author:
White, Mary
[ Edit | View ]
Date Posted: 16:30:57 06/15/06 Thu
Hi again, Stacy,
I did get a chance to check your website just now and I'm so sorry to hear about your latest problems. It was good to see you last night though and the fact that you had a good day is a blessing. You are in my prayers daily and I know God is keeping you going. I don't know many people who could be as tough as you've been through all this. Keep doing what you're doing.

Mary
Subject: Our Prayers are with you


Author:
Lucy & Jack
[ Edit | View ]
Date Posted: 21:22:04 06/14/06 Wed
Dearest Stacy,

Our thoughts and prayers are with you. I'm at the Cathedral lighting candles for you every day.

God love you!!

Love,
Lucy & Jack
[> Subject: HI


Author:
Stacy
[ Edit | View ]
Date Posted: 21:22:04 06/14/06 Wed
Hi Jack -n- Lucy! Great to hear from you!! Thank you so much for the thoughts, prayers, and candle lighting. I need that. It helps give me strength.

Love,
Stacy
Subject: Stacy, good to see you at the track the other week. I know you are going thru a rough time, but hang in there, we are all thinking and pulling for you!


Author:
'61 vette, Lucy, and Parker
[ Edit | View ]
Date Posted: 08:57:41 06/14/06 Wed
Subject: Cancer update -- Johns Hopkins -- Cancer News from Johns Hopkins


Author:
Stacy
[ Edit | View ]
Date Posted: 02:08:38 06/14/06 Wed

1. No plastic containers in micro.

2. No water bottles in freezer.

3. No plastic wrap in microwave.


Johns Hopkins has recently sent this out in its newsletters. This information is being circulated at Walter Reed Army Medical Center as well.

Dioxin chemicals cause cancer, especially breast cancer.

Dioxins are highly poisonous to the cells of our bodies. Do not freeze your plastic bottles with water in them as this releases dioxins from the plastic.

Recently, Dr. Edward Fujimoto, Wellness Program Manager at Castle Hospital, was on a TV program to explain this health hazard. He talked about dioxins and how bad they are for us.

He said that we should not be heating our food in the microwave using plastic containers. This especially applies to foods that contain fat. He said that the combination of fat, high heat, and plastics releases dioxin into the food and ultimately into the cells of the body.

Instead, he recommends using glass, such as Corning Ware, Pyrex, or ceramic containers for heating food. You get the same results, only without the dioxin. So such things as TV dinners, instant ramen and soups, etc., should be removed from the container and heated in something else. Paper is not bad but you do not know what is in the paper. It is just safer to use tempered glass, Corning Ware, etc.

He reminded us that a while ago some of the fast food restaurants moved away from the foam containers to paper. The dioxin problem is one of the reasons.

Also, he pointed out that plastic wrap, such as Saran, is just as dangerous when placed over foods to be cooked in the microwave. As the food is nuked, the high heat causes poisonous toxins to actually melt out of the plastic wrap and drip into the food.

Cover food with a paper towel instead.

Last edited by author: Wed June 14, 2006 02:08:38   Edited 2 times.

Subject: GEEEZZZ


Author:
Stacy
[ Edit | View ]
Date Posted: 07:52:28 06/12/06 Mon
It's been since the 12th of May that anyone other than Cliff has said anything on here. Not trying to make you all feel guilty but I sure would like to know you're out there.

Let me know what you've been up to. It doesn't have to be all about me on here!!
[> Subject: Geez!


Author:
Cliff
[ Edit | View ]
Date Posted: 00:00:51 05/28/06 Sun
Now I feel like the teacher's pet!
[> Subject: Hello, I am still here....


Author:
Anthony
[ Edit | View ]
Date Posted: 18:43:09 05/28/06 Sun
HI, I am here, and I am sorry I am not getting online as much as before. Just a lot going on... I sure wish you were here. How are the critters, do you still have the turtles. Had someone tell me the other day they might be Snapers? Be careful... Love Ya Kid.... Love and Prayers
[> [> Subject: HI UNCLE ANTHONY


Author:
Stacy
[ Edit | View ]
Date Posted: 07:56:31 06/01/06 Thu
My critters are doing fine although their mommy has a lung infection. Between that and chemo all I want to do is sleep.

One of the turles died this week. I was so disappointed. I think they are cool. They aren't the snapping turtles that every knows. However, depending on how you hold them they will stretch their neck and try to bite you. That only happened a couple times but they didn't get me.





Other than that I have very few reptiles left. I sold most of them to a store after I got out of the hospital last year. And the ones I caught around here I just let go. I still have 2 Oregon Newts and 3 lizards. I REALLY miss my box turtles. I should have sold the lizards and kept the box turtles. Charlie had SO MUCH personality. I miss him chasing the female turtles around the tank. Plus they were just cool to feed. They got to a point I could hand feed them.



Heard Gail is moving to Texas. We see Uncle William and Mildred occasionally. We really need to see them more often. I always enjoy myself when we go.

Love you and GB,
Casey Jones
[> [> [> Subject: Critters


Author:
Anhtony Howell
[ Edit | View ]
Date Posted: 21:45:33 06/11/06 Sun
It sure was great to hear from you... sorry about the turtle. I now have 8 dogs, Goldie, Lady, Bear, Sissy & 4 pups. Sissy is the mother of them, they are all Pomeranian Puppies. 2 blues, one golden and one patched looking.
I know how boring the bed can get. You are always in my prayers. Ashley was here for 3 weeks in May. She says she will be coming back in July for a while. Then she is going to Alabama for school. Well I guess I will go and check the 2african geese, 1 rooster, 8 dogs out then it’s to bed form... gby AND LOVE AND PRAYERS...
[> Subject: Pictures


Author:
Peg
[ Edit | View ]
Date Posted: 07:52:28 06/12/06 Mon
Stacy, thanks for the pictures. You looked really good and I love that sweatshirt. May I suggest you post your comments here so we can all read what you had to say.
Love, Peg
Subject: Stacy Stacy bo-Bacy...


Author:
Cliff
[ Edit | View ]
Date Posted: 22:13:57 06/10/06 Sat
Hi Stacy. How was your week? I've been busy with work, and this afternoon I went to my mom's place to install another ceiling fan for her, and put up towel racks in her bathroom. Now I'm sitting here, doing paperwork I brought home from the office. Oh, what an exciting Saturday night!

How have you been feeling? Have you gone to any car cruises in the past couple weeks?
Subject: Hey Girl!!


Author:
Jenn
[ Edit | View ]
Date Posted: 15:04:43 06/06/06 Tue
Hey Stacy!! Sorry I haven't been checking in lately but I have been busy as you know!
How are you feeling? Is your lung infection any better? Take Care of yourself & our love & prayers are with you always!
[> Subject: HI NEW MOMMY


Author:
Stacy
[ Edit | View ]
Date Posted: 15:04:43 06/06/06 Tue
How's that new baby? I bet you're exhausted all the time. Hopefully Dana helps out a lot.

I've been SOOOO tired. Between the drugs, chemo, and infection I can barely stay awake. Plus something I'm taking, I think it's one of the chemo drugs makes me vomit after about an hour after I eat. No particular foods, just at random. And usually very little warning. That's a nuisance.

The infection is somewhat better but I still have the cough.

I'm so glad to hear I'm still in your prayers. I don't hear that as much anymore. And I could really use some extra prayers these days.

I have chemo this Thursday.

I was so excited yesterday. I found a box turtle!! I really miss the ones I let go last year. I've named her June. That was my mom's idea since I found her in June.
Subject: Hi-Ho, Stacy


Author:
Cliff
[ Edit | View ]
Date Posted: 23:55:54 06/05/06 Mon
Hey Stacy, how are things going? Just thought I'd say hello. How is chemo going?
Subject: Hey


Author:
Deana
[ Edit | View ]
Date Posted: 10:06:22 06/01/06 Thu
Hey girl. How you feelin'? Do you need anything? I am available tonight (6/1) if you need me to stop by. I tried to call you but it just rang and rang so I figured this would be a good way to get in touch with you. Call me to let me know how your are feeling with the lung infection. 443-827-5233 Love ya girl!!!
Subject: Hey Stacy


Author:
Steve
[ Edit | View ]
Date Posted: 13:22:34 05/29/06 Mon
Hey Stacy wheres your pictures and video from BSR day at did you get any?? have a great holiday take care
[> Subject: Well.....


Author:
Stacy
[ Edit | View ]
Date Posted: 13:22:34 05/29/06 Mon
I just got the video camera to Mark today so he can work with it. I'm sure he'll get to it at his leisure.

I was having problems with my memory stick at my house but it seems work at Marks. I was so tired that day I didn't really take a whole lot.
Subject: RELAY FOR LIFE


Author:
Stacy
[ Edit | View ]
Date Posted: 08:20:34 05/29/06 Mon
The American Cancer Society is sponsoring the RELAY FOR LIFE this year. Here are the details:

Saturday June 10th
6:30 pm
Dundalk Community College

I've been asked to be a motivational speaker there. Since my x-nurse asked me to, I am honored she asked so I'll be there.

I think the walkers walk around a track then there's a reception.



Directions:
695 toward Dundlak
Take Merritt Blvd Exit
At the Holabird/Wise Ave intersection take a right (not Holabird)
Second light take a left (delvale)
College is about 1/4 mile down on the left


Last edited by author: Mon May 29, 2006 08:20:34   Edited 2 times.

Subject: Hi sweetie


Author:
Al R
[ Edit | View ]
Date Posted: 18:36:02 05/28/06 Sun
I didn't see anything about BSR day, did you go?.....and how are you feeling?
[> Subject: HI AL


Author:
Stacy
[ Edit | View ]
Date Posted: 18:36:02 05/28/06 Sun
Yes, I went to BSR day in my wagon and NO I didn't race it LOL!!! I took a friend of mine with me. Thank God she wanted to go. I was so beat because I couldn't get any sleep Friday night. She did all my video taping for me. She had a blast, she'll probably go again sometime. I was surprised I didn't see you yesterday especially since I saw Jack.

Actually I have an infection in my lungs. I've been coughing for two weeks and it's getting worse everyday. I talked to my doctor about it last week because my nose was running too. BUT I thought it was probably allergies since there is SO much pollen from the trees in the woods behind me. The coughing keeps me up at night. When I lay down it's worse.

I finally paged my doctor last night and discussed it with him. He said I have an infection. He prescribed an antibiotic and cough suppressant. I took the antibiotic and ended up throwing it up. Guess I can't take that one.

So I got hold of him again today and he prescribed a different one. So far so good!!!

Last edited by author: Sun May 28, 2006 18:38:22   Edited 1 time.

Subject: DID YOU KNOW???


Author:
Stacy
[ Edit | View ]
Date Posted: 19:49:50 05/25/06 Thu
Just an interesting tidbit I came across.

GOOSE BUMPS

Goose bumps (AE), also called goose pimples, goose flesh (BE), chicken skin (Hawaiian Pidgin), or cutis anserina, are the bumps on a person's skin at the base of body hairs which involuntarily develop when a person is cold or experiences strong emotions like fear.

The reflex of producing goose pimples is known as horripilation, piloerection, or the pilomotor reflex. It occurs not only in humans but also in many other mammals; a prominent example are porcupines which raise their quills when threatened.

Goose bumps are created when tiny muscles at the base of each hair, known as arrectores pilorum, contract and pull the hair erect. The reflex is started by the sympathetic nervous system, which is in general responsible for many fight-or-flight responses.

Goose bumps are often a response to cold: in animals covered with fur or hair, the erect hairs trap air to create a layer of insulation. In humans, it can even extend to piloerection (a response to cold or fear ) as a reaction to hearing nails scratch on a chalkboard or listening to awe-inspiring music.

In humans, goose bumps are strongest on the forearms, but also occur on the legs, back, and other areas of the skin that have hair. In some people, they even occur in the face or on the head.

Goose bumps can only occur in mammals, since other animals do not have hair. The term "goose bumps" is therefore misleading: the bumps on the skin of a plucked goose technically do not qualify as piloerection. Birds do however have a similar reflex of raising their feathers in order to keep warm.

Subject: MOTHER'S DAY


Author:
Stacy
[ Edit | View ]
Date Posted: 23:10:22 05/23/06 Tue
Mark modified a couple of them. Can you see the difference?






[> Subject: Very nice


Author:
Cliff
[ Edit | View ]
Date Posted: 21:06:35 05/23/06 Tue
The family resemblence is astounding! I guess your mom must have shaved her beard off, huh?
[> [> Subject: CAN'T FORGET MOM


Author:
Stacy
[ Edit | View ]
Date Posted: 23:10:22 05/23/06 Tue





Subject: BIG car cruise!


Author:
Cliff
[ Edit | View ]
Date Posted: 20:24:05 05/22/06 Mon
Hey Stacy:
I was in Ocean City this weekend--Cruisers Weekend. Actually, my trip had nothing to do with that, but it was a nice bonus! The cars were gathered at the Inlet parking lot. I got a shot from above--taken from the ferris wheel! I'd post it here for you if I knew HTML. It's coming to you via e-mail.
[> Subject: HERE'S THE PIC


Author:
Stacy
[ Edit | View ]
Date Posted: 01:01:16 05/22/06 Mon

[> [> Subject: Thanks!


Author:
Cliff
[ Edit | View ]
Date Posted: 20:24:05 05/22/06 Mon
Thanks--that's quite a car cruise! I wish you and your wagon had been there! Needless to say, there was a lot of rubber left on the streets of OC this weekend. (At one point, Bev saw so much smoke that she thought there was a fire!) Saw quite a few 427 Cobras. Someone had even hot-rodded a golf cart.
Subject:
HI GLYNDA


Author:
Stacy
[ Edit | View ]
Date Posted: 11:28:21 05/21/06 Sun
HI GLYNDA! It was a pleasure to meet you yesterday. I'm so glad you felt comfortable enough to come over and talk to me AND get in my car to talk. Tyler liked you also. I am adding you to my prayer list of cancer survivors. I pray for everyone but I pray a special prayer for cancer survivors. Sure hope you get to see this and I hear back from you.

Subject: Just checking in


Author:
Cliff
[ Edit | View ]
Date Posted: 22:56:55 05/18/06 Thu
Hi Stacy. Just thought I'd say hello, and see how things are going. Having fun with the wagon? You know, there's a car cruise every Friday evening down here on Ritchie Highway, just a mile from my house. They've been there for the past couple years, but it seems to have grown this year. Maybe you should take the wagon through the Harbor Tunnel some Friday evening...and there's a local restaurant right across the street! :)

I'm going to Ocean City this weekend. Hope the weather is good. At the moment, the forecast for Saturday in Ocean City is for mostly sunny skies, high about 70 degrees. I can live with that, since the water is still too cold for swimming anyway.

My mom seems to be enjoying her new home. We're not quite finished yet, but we can do the rest while she's there. I'm not used to having her so close by. I went by a couple times this week, after dinner, to install blinds on her windows. I know you're used to having your mom near you--but for me, it's a big change.

How've you been feeling? How is chemo going?
Subject: HAPPY BIRTHDAY MARK!!


Author:
Stacy
[ Edit | View ]
Date Posted: 13:11:30 05/17/06 Wed


LET'S ENJOY THOSE STEAMED CRABS!!


[> Subject: THANK YOU !


Author:
Mark
[ Edit | View ]
Date Posted: 13:11:30 05/17/06 Wed
those crabs were delicious!
I had a great time last night!
thank you taking me out last night!
Subject: TO ALL YOU MOM'S


Author:
Stacy
[ Edit | View ]
Date Posted: 11:58:32 05/14/06 Sun

Subject: FUNNY


Author:
Stacy
[ Edit | View ]
Date Posted: 16:45:30 05/12/06 Fri

[> Subject: LOL


Author:
Stacy
[ Edit | View ]
Date Posted: 16:45:30 05/12/06 Fri
This is a cute video.


MAKE SURE YOU TURN UP THE SOUND!!
Subject: Estrogen Receptor


Author:
Connie
[ Edit | View ]
Date Posted: 16:41:33 05/12/06 Fri
Stacy

I have searched your site, but I can't find if you stated if you were positive or negative estrogen receptor?

I'm negative, what are you?

Connie
[> Subject: ESTROGEN


Author:
Stacy
[ Edit | View ]
Date Posted: 16:41:33 05/12/06 Fri
Hi Connie! I'm negative also. I don't know that I've ever said on here what I was/am.
Subject: CHRISTIAN WAYS TO REDUCE STRESS


Author:
Stacy
[ Edit | View ]
Date Posted: 14:23:30 05/12/06 Fri
An Angel says, "Never borrow from the future. If you worry about what may happen tomorrow and it doesn't happen, you have worried in vain. Even if it does happen, you have to worry twice."

1. Pray

2. Go to bed on time.

3. Get up on time so you can start the day unrushed.

4. Say No to projects that won't fit into your time schedule, or that will compromise your mental health.

5. Delegate tasks to capable others.

6. Simplify and unclutter your life.

7. Less is more. (Although one is often not enough, two are often too many.)

8. Allow extra time to do things and to get to places.

9. Pace yourself. Spread out big changes and difficult projects over time; don't lump the hard things all together.

10. Take one day at a time.

11. Separate worries from concerns. If a situation is a concern, find out what God would have you do and let go of the anxiety. If you can't do anything about a situation, forget it.

12. Live within your budget; don't use credit cards for ordinary purchases.

13. Have backups; an extra car key in your wallet, an extra house key buried in the garden, extra stamps, etc.

14. K.M.S. (Keep Mouth Shut). This single piece of advice can prevent an enormous amount of trouble.

15. Do something for the Kid in You everyday.

16. Carry a Bible with you to read while waiting in line.

17. Get enough rest.

18. Eat right.

19. Get organized so everything has its place.

20. Listen to a tape while driving that can help improve your quality of life.

21. Write down thoughts and inspirations.

22. Every day, find time to be alone.

23. Having problems? Talk to God on the spot. Try to nip small problems in the bud. Don't wait until it's time to go to bed to try and pray.

24. Make friends with Godly people.

25. Keep a folder of favorite scriptures on hand.

26. Remember that the shortest bridge between despair and hope is often a good "Thank you Jesus."

27. Laugh.

28. Laugh some more!

29. Take your work seriously, but not yourself at all.

30. Develop a forgiving attitude (most people are doing the best they can).

31. Be kind to unkind people (they probably need it the most).

32. Sit on your ego.

33. Talk less; listen more.

34. Slow down.

35. Remind yourself that you are not the general manager of the universe.

36. Every night before bed, think of one thing you're grateful for that you've never been grateful for before. GOD HAS A WAY OF TURNING THINGS AROUND FOR YOU. "If God is for us, who can be against us?" (Romans 8:31)

Last edited by author: Mon May 08, 2006 08:35:08   Edited 1 time.

[> Subject: Wordt o live by


Author:
Connie
[ Edit | View ]
Date Posted: 18:15:45 05/09/06 Tue
Stacy
I think #37 should be:

K.I.S.S. = Keep It Simple Stupid

I have to remind myself of this one all the time. I am always trying to over analyze or perfect everything.
[> [> Subject: #38


Author:
Stacy
[ Edit | View ]
Date Posted: 22:12:44 05/09/06 Tue
LOL!!

Then I think #38 should be:

Q-TIP = Quit taking it personally.
[> [> [> Subject: Q-tip


Author:
Connie
[ Edit | View ]
Date Posted: 14:23:30 05/12/06 Fri
Oh, Stacy
I love it.
I had never heard or seen that one. That one jumps to the top of my list.

How are you doing? What do you plan on doing for Mother's Day?
Connie
Subject: ACTUAL SIGN


Author:
Stacy
[ Edit | View ]
Date Posted: 23:32:54 05/11/06 Thu
THIS IS AN ACTUAL SIGN AT A MCDONALDS IN FOREST HILL, MARYLAND FROM LAST YEAR!

I know it's real because I took the pictures!





Last edited by author: Wed May 10, 2006 05:07:03   Edited 1 time.

[> Subject: McDonald's


Author:
Cliff
[ Edit | View ]
Date Posted: 22:47:40 05/10/06 Wed
I think they're being honest, because I've seen a lot of dumb sh*ts working there...
[> [> Subject: YUP


Author:
Stacy
[ Edit | View ]
Date Posted: 23:20:14 05/11/06 Thu
Yea, and it's usually the ones that bag the food!
[> [> [> Subject: McDonald's food


Author:
Cliff
[ Edit | View ]
Date Posted: 23:32:54 05/11/06 Thu
A statement about McDonald's food:

Patrick and I were at the drive-thru at McDonald's one evening, and we saw one of the employees, in uniform, coming across the parking lot...with a pizza from Pizza Hut across the street......
Subject: MARK YOUR CALENDARS


Author:
Stacy
[ Edit | View ]
Date Posted: 11:27:10 05/05/06 Fri

[> Subject: CHEMO NURSE


Author:
Stacy
[ Edit | View ]
Date Posted: 11:27:10 05/05/06 Fri
Beth has been my chemo nurse on several occasions whenever Tracey or Jeanette was out of the office. Beth had breast cancer before. But her cancer came back. We've been at chemo together a lot of times.

She sent me an email with this poster attached so I thought I would invite as many people as possible for her.
Subject: SLEEP


Author:
Stacy
[ Edit | View ]
Date Posted: 02:26:12 05/04/06 Thu
HOORAY!! HALELLUJIA!! AMAZING!!! I ACTUALLY GOT A GOOD NIGHTS SLEEP LAST NIGHT. I still woke up a couple of times but at least when I was asleep it was sound.

I felt refreshed enough to drive up to Dad's today. I took some pictures...


THE WAGONS



TYLER LOVES HIS GRANDPA



DAD and TYLER



ME



DAD NAPPING IN THE FRONT YARD



A WAGON FAMILY



MARK WORKING ON NEW MOTOR FOR HIS WAGON



after I left Dads house, me, Mom, aunt Nancy met our friend, Peg, for dinner at Olive Garden.
This picture is from 2003.


One last picture I want to post. My friend Betty from chemo asked me to post this picture. She heard about it but never saw it.

Last edited by author: Thu May 04, 2006 02:26:12   Edited 1 time.

Subject: Persevere!


Author:
Diane Wesche
[ Edit | View ]
Date Posted: 11:15:24 05/03/06 Wed
Stacy,

Keep persevering! Your notes didn't say anything about how you are taking the news, but I'm sure you are still a model of strength.

May God Bless Your Life and all the other lives that you touch and influence,
Diane
[> Subject:
FEELINGS


Author:
Stacy
[ Edit | View ]
Date Posted: 11:15:24 05/03/06 Wed
It's funny you said that about how I feel about all this. No one has asked me that. I still have the same attitude that I've had all along. As long as there is an option for me, I still plan on being here. I seem to get good news and bad news at the same time.

Like for instance, the bone scan was to see if there was a problem causing head pain. No reason for that in the scan but we found the cancer spread to my hip. Now we know that's an area I need to be careful of. And that can be treated with the same drug I'm already on.

I had the MRI of my head again looking for a problem causing head pain. Again no reason for that in the scan but we found the cancer is back in my brain. But I also found out the full radiation to the brain did a great job. Maybe I can get the Gamma Knife procedure for the new cancer.

I never like hearing about new places it has spread to but I put my self in God's hands long ago and I keep on praying for restored health, strength, and continued determination and will to fight my battle.

The hardest part about all of this is the fatigue. It get's worse all the time. I hate sleeping my days away but sometimes I just have to.

It's great to hear from you and I'm so glad you visited my site. Hope to hear from you again. I sure hope all is well with you and your family!

Last edited by author: Wed May 03, 2006 11:16:46   Edited 1 time.

Subject: 5TH ROUND OF CHEMO AND BRAIN MRI RESULTS


Author:
Stacy
[ Edit | View ]
Date Posted: 23:19:09 04/30/06 Sun
I went to my 5TH ROUND OF CHEMO today. All went well. My friend, Betty, that I met in chemo was supposed to come visit my today. She did not show up but then I found out she has a sore throat and a runny nose. I REALLY APPRECIATE HER CONCERN FOR MY HEALTH BY NOT BRINGING ME SOMETHING THAT COULD MAKE ME SICK. Most people do not think about that.

I had Benedryl with the chemo as usual. It wiped me out today worse than usual. I think it is because of the Valiums from yesterday.

I also received my results from BRAIN MRI. There are two positives and one negative from the results. Most people want to hear THE BAD NEWS FIRST so I will tell you that first.

Although we were looking to figure out why I have been having pains on the left side of my head, it is a good thing I insisted on an MRI. I have 3 new masses in my brain. The doctor is not sure how he wants to handle this yet because I have already had radiation and since it is more than one, I cannot have surgery. Chemo does not work on the brain. Since they are fairly small, he will do another MRI in June to check progress. If they are the same or worse, he will refer me to a neuro-oncologist at Johns Hopkins. Two of the masses are in the cerebellum and one is in the basal ganglia. The cerebellum controls your balance. I have noticed that my balance has been getting worse lately. More like it was after the radiation. The doctor said my symptoms should be from the radiation but I halfway disagree because that had improved a great deal. It has only been lately that it has not been as good.

I AM SO GLAD I LISTEN TO MY OWN BODY. I seem to know it the best! This is not the first time that I insisted on a test to the point the doctors give in. When they do, most of the time they find something that needs attention and it's not for what they were looking for. I always know when something is not right.

In perspective to the entire brain...



Specific problem areas....




AND NOW FOR THE GOOD NEWS….

We were originally looking to figure out why I have been having pains on the left side of my head and left ear. The MRI did not show anything related to that. So from his perspective he still thinks it is a reaction from the chemo. “I” believe that it’s muscle related from my neck. I been going to a chiropractor and there is significant improvement. The ear pain is almost gone and the head pain is probably a good 50 to 60% better.

EVEN BETTER NEWS….

The brain MRI showed that 4 out of the 5 original masses in my brain that caused the seizure are completely gone. That would explain (to me at least) why the balance issue was better for a while. And the 5th one in the Occipital Lobe (see above picture to see it’s location and what it controls) shrunk 50%.

The red dots show where the cancer was originally....




A VERY IMPORTANT PIECE OF ADVISE….

Words of advise to people WITHOUT cancer. PLEASE respect your friends and family immunity issues that have any kind of cancer. Most people’s white blood cells (called neutropenia) drop while undergoing chemo and/or radiation. That makes them susceptible to getting sick and it is harder for them to recover. Sometimes they have to hospitalized to be treated. In addition, sometimes they can get pneumonia and possibly die. When white blood cells are destroyed, patients become vulnerable to infections, and even a minor case of the flu can become life threatening.

If you’re not sure if you have a cold, the flu, any infection, or even allergies DO NOT TAKE THE CHANCE by visiting your loved one.

Last edited by author: Fri April 28, 2006 09:34:29   Edited 5 times.

[> Subject: latest MRI


Author:
Mary White
[ Edit | View ]
Date Posted: 08:39:20 04/28/06 Fri
Hi Stacy,
You continue to amaze me. Thank God for the good news about shrinking tumors and your continued determination. As for the bad news, you've had bad news before and have managed to fight your way through it. Every time I see you out and about around the neighborhood, it reminds me of what strength you possess. Keep going--you're an inspiration to the rest of us.
Mary
[> Subject: Your MRI


Author:
Peg
[ Edit | View ]
Date Posted: 12:13:29 04/30/06 Sun
Stacy,

What a shame this news came right after the good news a couple of weeks ago. You are so right to listen to your own body and insist on any tests you feel are needed. Knowing everything is necessary to making the right decisions. Can you have more radiation for these masses? I know you had a reaction to the radiation, but since it was so effective in getting rid of the original spots, can they do it again with precautions that would lessen the side effects?

Hope to see you Wednesday night! Love, Peg
[> [> Subject: HI PEG


Author:
Stacy
[ Edit | View ]
Date Posted: 21:47:22 04/30/06 Sun
I was just saying to Mom and Aunt Nancy today that it seems like it's been a long time since we've seen you. I'm used to every two weeks or so.

I didn't have a reaction to the radiation, it was a severe allergic reaction to the seizure medicine (Dilantin)called Steven's Johnson Syndrome. My forehead did burn though from radiation and SJS made it worse.

To answer your question, no I cannot have more radiation to the brain since I had radiation to the full brain the last time. One can only have so much radiation in a lifetime.

After the MRI in June, I may be referred to a doctor at John's Hopkins to see if I can have something called Gamma Knife treatments. The Gamma Knife technology can be used to treat those who do not require immediate surgical relief of disabling symptoms and whose tumors are in general 3.5 cm or less. If I end up having to get the Gamma Knife, I'll explain in a later post how it's done.
[> Subject: Hi Stacy


Author:
Cliff
[ Edit | View ]
Date Posted: 23:19:09 04/30/06 Sun
Sorry to hear about the new masses in the brain (obviously!), but it sounds like the doctor isn't getting all bent out of shape about it at this point.

I'll second your statement about staying away from people in chemo if you have something contagious. We lost my dad last summer not because of the cancer itself, but because he contracted severe pneumonia while undergoing chemotherapy. We don't know how he got it, and I don't want to suggest that someone did something careless, but there's little doubt that his weakened immune system was at the heart of the problem.
Subject: HEY THERE


Author:
Karen
[ Edit | View ]
Date Posted: 21:31:17 04/30/06 Sun
Hey there Stacy. I love checking your web site. You never cease to amaze me. You are a role model for living. Wish I was was still at Good Sam so I could be your nurse. Keep it up. YOU ROCK!!!!!!!!!!
Subject: MRI


Author:
Cliff
[ Edit | View ]
Date Posted: 00:08:07 04/28/06 Fri
Hi Stacy. Hope the MRI went smoothly today, and that it doesn't show any serious problems. When will you get the results?
[> Subject:
MRI


Author:
Stacy
[ Edit | View ]
Date Posted: 00:08:07 04/28/06 Fri
The actual MRI went VERY smoothly. I am claustrophobic so I took Valiums before I went to bed and more the morning one hour before the test. So I slept through the whole thing. The only time I'd wake up was when they would take me out of the tube to reposition me for the next next. I had a total of four tests They scanned the left shoulder, then the right shoulder, then they had to scan the brain without dye then scan it again with dye.

I could have cared less about being in there. As soon as I lay down on the table I close my eyes and hope the Valiums take care of the panic. They always do!!

My tests started at 7:00am. I was completely wiped out when we left. Thank GOD Mom took me. I went home around 10:00 or 10:30am. I took my babies outside then I went to bed. I didn't wake up until 3:30 in the afternoon. I had to go up to Bel Air by 5:00. I swear I was still under the influence of the Valiums!!!

Last edited by author: Fri April 28, 2006 00:08:49   Edited 1 time.

Subject: HELLO, STACY!


Author:
Cliff
[ Edit | View ]
Date Posted: 23:24:43 04/23/06 Sun
Hi Stacy! Just thought I'd drop by and see how you're doing. Seems to me that you've always been one to somehow find the positives in everything you go through. But does chemo seem MORE positive, now that you have evidence that it's working?

I've been working on my mom's place--still. Most of what's left is finish work. I put in her bathroom sink/vanity and medicine cabinet this afternoon. Her furniture has already been moved in, and she's getting boxes out of storage, a few at a time. She'll be moving in very soon.
[> Subject: CHEMO


Author:
Stacy
[ Edit | View ]
Date Posted: 11:32:39 04/23/06 Sun
It is positive from the perspective that the chemo is working. I'm not too crazy about the side effects I've been having. But I'll deal with them as long as the chemo works.

I'm so happy to see the rain!! We really need it!

Sounds like your Mom's place is really coming along. Is she happy with it?
[> [> Subject: Chemo


Author:
Cliff
[ Edit | View ]
Date Posted: 23:24:43 04/23/06 Sun
I guess the side effects are not exactly a picnic. But seeing the results must make it easier. I assume that, after seeing the progress, the plan is: keep doing what we're doing!

My mom is getting excited, I think. She hasn't moved in, but she's been spending a lot of time at the place--especially now, with her stuff being moved in.
Subject: MRI


Author:
Stacy
[ Edit | View ]
Date Posted: 21:25:51 04/21/06 Fri
I rescheduled my MRI of my head and shoulders to Wednesday, April 26th. I'll have chemo on the 27th.
Subject:


Author:
Stacy
[ Edit | View ]
Date Posted: 00:11:23 04/16/06 Sun

Subject: CHICKEN DANCE


Author:
Stacy
[ Edit | View ]
Date Posted: 20:43:51 04/15/06 Sat
I got great news today. I went to see Dr. Hahn to find out my CT Scan results. He told me that most of the masses are SHRINKING!! The largest mass in my lung that has been there since the beginning is dieing from the inside out. It’s forming a cavity in the center of it.

This means the chemo is working!! And the prayers!!

I CAN DO THE DANCING CHICKEN AGAIN!!!!



I also asked Dr. Hahn if I could get an MRI on my head because of the pain I've been having. The Orthopedic Surgeon believes as I do, the that the shoulder pain is probably bursitis. He suggested an MRI of both shoulders. So, I will get an MRI of all three places on Thursday, April 20th.
[> Subject: Thats GREAT NEWS!


Author:
Mark
[ Edit | View ]
Date Posted: 02:55:33 04/12/06 Wed
Thats the best news I've heard in a long time!
I'm thrilled for you!
Keep bringing us great news!
[> Subject: Great to hear


Author:
Steve
[ Edit | View ]
Date Posted: 06:55:21 04/12/06 Wed
Thats great news to hear Stacy
nice dance there too lol
[> Subject: great news!


Author:
Bev
[ Edit | View ]
Date Posted: 08:21:14 04/12/06 Wed
Stacy, that is the BEST news! I was sooooooo glad to hear it. Good things are going to keep on happenin for you...just wait and see!
[> Subject: Great news is right


Author:
Rhea
[ Edit | View ]
Date Posted: 09:11:55 04/12/06 Wed
Stacy,

Your news has made my day. Wishing you and your family a blessed Easter holiday. Greeks celebrate on April 23 this year, so I'll be out looking for clearance chocolate bunnies on April 17th.

Hope the Easter Bunny is good to you.

Rhea
[> Subject: Congratulations!


Author:
Peg
[ Edit | View ]
Date Posted: 09:28:46 04/12/06 Wed
Stacy, what great news! I can't wait to give you a hug tonight. See you then.
Much love, Peg
[> Subject: CT Scan Results


Author:
Char Libertini
[ Edit | View ]
Date Posted: 12:33:27 04/12/06 Wed
Stacy:

Wonderful news!!! You are a miracle of God!
[> Subject: CHEERING FOR YOU!!!


Author:
Donna
[ Edit | View ]
Date Posted: 14:00:31 04/12/06 Wed
GREAT NEWS!!!
HAPPY EASTER :)
[> Subject: OH YEAH!!!!!!!!!!!!


Author:
Cliff
[ Edit | View ]
Date Posted: 22:39:03 04/12/06 Wed
Congratulations!!!! Way to go, Stacy!!!! So that means our dinner and car cruise date (hint hint) can be a celebration!
[> Subject: Great news.


Author:
Jody Kindhart
[ Edit | View ]
Date Posted: 01:04:56 04/13/06 Thu
Hey Stacy,

That is totaly awsume, I can not think of any better news that you could have gotten.

Jody B-)
[> Subject: great news


Author:
Mary White
[ Edit | View ]
Date Posted: 09:13:18 04/13/06 Thu
Hi Stacy,

I'm probably last to see this, but I am thrilled for you. God is looking out for you for sure, and the doctors too, of course.

Mary
[> Subject: GREAT NEWS!!!


Author:
Ron and Carol Earp
[ Edit | View ]
Date Posted: 14:34:29 04/13/06 Thu
Just got the e-mail from your Mom. That is awesome news! What a great Easter gift. We'll keep the prayers going for more good news next week when you go for the MRI. Hope the Easter bunny leaves some goodies for you on Sunday. Ron and Carol Earp
[> Subject: alll right!!!


Author:
Bonnie bain
[ Edit | View ]
Date Posted: 21:14:18 04/14/06 Fri
Hey Girlfriend!!!!

What great news...let's get chinese!!!!

Addy is doing well and has totally won over Sebastian(she's such a flirt)

Love
Bon
[> Subject: God works for the good


Author:
Diane Wesche
[ Edit | View ]
Date Posted: 20:43:51 04/15/06 Sat
God is showing that He once again made true his words, "And we know that in all things God works for the good of those who love him, who have been called according to his purpose." Romans 8:28

Your joy and encouragement are such a blessing to all. I'm so glad that you had good news (not just that Christ lives) but that your tumors are shrinking.
Subject: Tyler riding with his momma!


Author:
Mark
[ Edit | View ]
Date Posted: 15:41:28 04/12/06 Wed
click on pic for video

Subject: Stacy,Tyler and her Wagon


Author:
Mark
[ Edit | View ]
Date Posted: 10:57:04 04/12/06 Wed

[> Subject: ...LMAO!!!!


Author:
Mark
[ Edit | View ]
Date Posted: 22:50:31 04/10/06 Mon
[> [> Subject: ROFLMAO


Author:
Stacy
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Date Posted: 23:09:38 04/10/06 Mon
THE BLUES CREW!! I love this shot!!
[> [> [> Subject: UGLY GUY?!


Author:
Mark
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Date Posted: 10:57:04 04/12/06 Wed
hey,who's the bald ugly guy that keeps getting in all your pictures...LOL!???!!
Subject: Hi Stacy!


Author:
Al R (i own a dog now)
[ Edit | View ]
Date Posted: 08:22:46 04/12/06 Wed
This is GREAT news! With any luck you can take a break from the chemo for a while, and just enjoy your summer!
Subject: Stacy thats great ! You deserve so much more wishing the best for ya


Author:
CamaroRat
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Date Posted: 08:04:53 04/12/06 Wed
Subject: VISITOR NUMBER


Author:
Stacy
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Date Posted: 15:45:02 04/10/06 Mon
I WAS VISITOR NUMBER 11966. I think that's funny because I was born in January 1966. Small ironies are fun.
Subject: Sharon P.


Author:
Mark
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Date Posted: 02:10:54 04/09/06 Sun
I saw your gal Sharon tonight! She says to give her a call!
Hec,I do believe she needs you!.........but,you know her better than me!

You see what I see.....is the whole world blind????
Subject: heres Stacy at the Car Cruise in Campus Hills


Author:
Mark
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Date Posted: 23:57:50 04/08/06 Sat

[> Subject: THANKS


Author:
Stacy
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Date Posted: 23:05:16 04/08/06 Sat
Click on pic for video.
[> [> Subject: Cruises


Author:
Cliff
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Date Posted: 23:57:50 04/08/06 Sat
The Friday night cruises at the shopping center in Brooklyn Park have started. They had a decent crowd (by their standards) last night. I didn't get to stop in, though--I was on my way out to dinner.
Subject: Hey sexy!!!!


Author:
Ashley
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Date Posted: 16:25:08 04/08/06 Sat
hey you,
just thought that Id let you know that you are still in my thoughts and LOOKING GREAT!!!!!!
Love and prayers, Ash
Subject: ROUND 3 OF CHEMO


Author:
Stacy
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Date Posted: 09:44:31 04/07/06 Fri
I started the third round of chemo today. I did not get good nights sleep last night so the Benedryl really made me drowsy. I am so glad my Aunt Nancy takes me and brings me home, especially when I get the Benedryl.

The chemo went well. In addition, my friend, Betty, came to visit me during chemo. She is the one that finished chemo last month and had the sweatshirts made for me. She had non-small cell lung cancer. She just had a CT scan and her results were fabulous. There is no sign of the cancer anymore. That is wonderful news and I am SOOOO happy for her. Congratulations to Betty and Carl.

I saw Dr. Hahn yesterday instead of today because he would be off today and tomorrow. I am still having A LOT of head pain. I have also been having a lot of shoulder pain. Dr. Hahn wants me to see an Orthopedic Surgeon on Monday because he feels this is a joint issue, not cancer.

I am scheduled for shoulders x-rays on Friday for the Orthopedic doctor. I am also having a CT scan on Friday to check the progress of the chemo.



Before chemo today, I went to see the radiologist. My regular doctor was not there but one his partners’ from another hospital was filling in for him. She agrees that I should see the orthopedic doctor. She thinks the problems could be starting in the neck causing both the head and shoulder pain. We will see.

I came home and napped for FIVE hours!! Thanks Benedryl!!


Last edited by author: Thu April 06, 2006 21:37:13   Edited 1 time.

[> Subject: Hey!


Author:
Cliff
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Date Posted: 00:15:44 04/07/06 Fri
Joint problems??? Didn't I tell you to give up joints????
[> [> Subject: HEY!


Author:
Stacy
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Date Posted: 09:44:31 04/07/06 Fri
HEY! The only joints I ever do are redneck hillbilly joints (bars) and that's rare!!! Don't you give everyone on here the wrong impression of me!! LOL!!
Subject: THE RESULTS FROM THE BONE SCAN ARE IN


Author:
Stacy
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Date Posted: 07:39:16 04/04/06 Tue
I called Dr. Hahn today and found out the results of the bone scan I had last Monday. He said I had to go get an x-ray of my right hip. That was the only area he was concerned about from the scan.

I went to American Radiology and had the x-rays done. Afterwards, I took the films over to Dr. Hahn. The bone scan said that I have a high probability of metastasis in the right hip however; the x-rays do not show anything. My doctor said that means it is not bad enough to show up on the x-rays so we are ahead of the game. I will see him this Wednesday for an official visit and exam. I am sure I will find out more then. I do not know if they can radiate the area or just keep me on chemo.

The area that it is in is like a ball joint. It is in an area called the ACETABULUM. That is the joint area where the ball of the femur (thigh bone) fits in. See pictures below.


FRONT VIEW



LATERAL (SIDE) VIEW



PLEASE KEEP THE PRAYERS COMING!

[> Subject: Bone scan


Author:
Cliff
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Date Posted: 07:39:16 04/04/06 Tue
I think I like the x-ray better than the bone scan....

I like the wagon! You're going to have to show it to me in person one day very soon.
Subject: Stacy & her Wagon at Car Cruise 3-31-06 Campus Hills Shopping Center


Author:
Mark
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Date Posted: 21:22:35 04/01/06 Sat

Subject: EXTERA


Author:
Mark
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Date Posted: 18:50:11 03/30/06 Thu
Stacy,did you get the EXTERA home today without anymore troubles??? Did you get the flat tire plugged & the other tires inflated,including the spare?

If its not raining tomorrow evening are you coming up to go to Roy Rodgers for the car cruise?Got any new pics of the Wagon with its new WELD WHEELS yet????
If you want to cruise Roys,get here by 5-5:30
[> Subject: WAGON!


Author:
Stacy
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Date Posted: 18:24:37 03/30/06 Thu
Feel free to post the pics of the wagon here too!

Yea, I got the tire plugged and an oil change. I told them to check the tire pressure on all the tires including the spare. I don't know if they did for sure or not. It had a concrete nail in it! That sucker was about two inches long!!

I told them to check my steering fluid also while I was standing right there with the car. It sounds strange when I first start driving, particularly when it's cold. It's almost a whirring sound. The guy said, "you're definitely going to need fluid, you have a leak". Can you believe that!?!?!?! He tightened the clamp on the hose since it seemed a little loose. At least we know if it keeps leaking it ONLY needs a hose.

Yea, I wanna go to the car cruise. I'll be at your house by 5:00.
[> [> Subject: Stacys Hot Rod Wagon with new exhaust,Wheels/Tires & personalized tags!


Author:
Mark
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Date Posted: 18:50:11 03/30/06 Thu

Subject: MY DESIGN


Author:
Stacy
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Date Posted: 08:29:37 03/30/06 Thu
Do you remember below I said that I had a specific design and wording that I wanted on sweatshirt, down to the color of the sweatshirt? Well... here it is.....




[> Subject: Awesome outfit


Author:
Connie
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Date Posted: 21:54:22 03/29/06 Wed
Stacy
Wow. I love the outfit. I can see why you wanated that particular outfit.. You have earned it, girl!!!! You will be able to wear the top to your next chemo session next month. It certainly makes a statement.

Hey, have you been following the Nascar lately? Who is your favorite driver? Mine has been Dale Earnhardt, Jr., but really getting to like Kasey Kahne.

I suppose you have been fortunate to have good weather in your area, so you have been out cruising. lol
Talk to you later.
Connie
[> Subject: Sweatshirt


Author:
Peg
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Date Posted: 08:29:37 03/30/06 Thu
Stacy, I love the sweatshirt!! The color is wonderful and you look absolutely great -- so coordinated and slim!! I leave tomorrow for my trip and will be in touch when I get home.
Love, Peg
Subject: Hello, Stacy!


Author:
Cliff
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Date Posted: 22:33:35 03/26/06 Sun
Spring? It's ALMOST spring--officially, at least. Didn't really feel like it this weekend, though. I was painting at my mom's future place today--actually, I was priming. Let's see....the place has to be painted, drop ceiling hung in the kitchen area, subfloor laid, carpet installed, bathroom fixtures installed, kitchen cabinets, countertop, etc., installed, appliances brought in....yeah, there's plenty left to do, but actually, that stuff shouldn't take too long. Most of the walls are up. The fireplace insert has been installed--it's a gas fireplace, which will serve as a source of heat. It works REALLY well, and it looks nice. I know I'll be spending more time there, working.

So the new chemo isn't too bad? That's good news--as long as it works! Hopefully you'll have enough energy for the cruises and the trips to the track. I saw an article in the Sun a while back about 75/80 closing. But I guess you usually go to Cecil with Mark, right?
[> Subject: ???????


Author:
Stacy
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Date Posted: 23:46:12 03/20/06 Mon
GOOD GRIEF, HOW DO MAKE TIME FOR YOUR LADY FRIEND?

Yea, 75/80 already closed last year. Mark and I went for the final "test-n-tune" day. Mark and I usually do go to Cecil. It's a lot closer regardless if 75/80 closed or not. I'll be at car cruises whether I'm tired or not. Bought some new wheels tonight. Plus I got the flowmasters on over the weekend.
[> [> Subject: New wheels for your new wheels


Author:
Cliff
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Date Posted: 23:10:38 03/21/06 Tue
We have to take care of family, don't we?

When will we see some new pics of your hot rod?
[> [> [> Subject: YEP


Author:
Stacy
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Date Posted: 10:00:24 03/22/06 Wed
Yes we do.

I'll put more pics on when I get the wheels put on. Then you'll see the difference! I still have to pick up the other two then get them put on.
[> [> [> [> Subject: Hot Wheels


Author:
Cliff
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Date Posted: 22:25:24 03/26/06 Sun
So when will you have the wheels on? It's getting close to cruising time, and you still owe me a dinner date!

Hope you had a good weekend. I spent mine painting my mom's place. I hate painting! It's boring and tedious. At least that's MY opinion. But it was for my mom, so of course I didn't mind doing it.
[> [> [> [> [> Subject: WHEELS


Author:
Stacy
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Date Posted: 22:33:35 03/26/06 Sun
Well, I have the wheels and the tires and everything is ready to be put on the car. However, I had to order the lug nuts I wanted with wheel locks and center caps so I'm waiting for them to come in. It should be this week that I get them since they shipped today and they are being delivered by Fed Ex. I suppose Mark will put them on shortly after that.
Subject: IN MEMORY OF DUANE COOMES


Author:
Stacy
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Date Posted: 09:50:53 03/24/06 Fri
A friend of the family passed away Thursday morning at home after a long illness. Duane Coomes was the husband of the late June Coomes who was well known in Bel Air as the owner of the 7-11 for many many years. June passed away this past October. Duane worked at the 7-11 for many years.

My sympathy and prayers go out to Bev, his daughter, and the rest of the family.

Anyone that knew him, here are the arrangements:

The viewing is at McComas Funeral Home in Bel Air on Sunday, March 26th, from 6-9 P.M. The service is at 11:00 on Monday also at McComas Funeral Home in Bel Air.

Subject: greetings


Author:
Mary White
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Date Posted: 23:41:57 03/20/06 Mon
Hi Stacy,
First of all, I am thinking of you and hoping that you had a good weekend and that today you will find some more joy and comfort.

There's a board meeting tonight so there will be minutes coming soon. I do need my proofreader. Thanks for your help.

Mary
[> Subject: MINUTES


Author:
Stacy
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Date Posted: 23:41:57 03/20/06 Mon
Your proofreader is ready and waiting! LOL!! Hope the meeting went well.
Subject: ROUND 2


Author:
Stacy
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Date Posted: 23:40:04 03/20/06 Mon
I went to chemo today to start ROUND 2. Dr. Hahn has decided to change my regiment to once every 21 days. At that time, I will receive both the Abraxane and Avastin at the same time. He has modified the “amount” of both drugs to be able to get it every three weeks. It will no longer be a 6-week regiment. This should make it easier for both of us.

After this round has completed and I go the 21 days without problems, Dr. Hahn will schedule another CT scan to check progress.



Dr. Hahn also wants a bone scan because of left ear and head pain that I have been having for several weeks. It’s not like a headache, it is more like the pain I had with the Steven’s Johnson Syndrome. I cannot lie down on the left side for too long because it causes too much discomfort. Since it has gotten worse, Dr. Hahn wants a bone scan to look for the cancer spreading to the bones. I will get it done March 27th at Good Samaritan so Jeannette can access my port. Dr. Hahn does not believe it is the cancer spreading to the bone. He thinks it is probably nerves trying to regenerate from damage from radiation. He also thinks the chemo could be irritating them. He would much rather see that then bone cancer. ME TOO!



My friend, Betty, that I met in chemo came down from Stewartstown, Pennsylvania just to visit with me while I got chemo today. She finished her chemo on February 24th. CONGRATULATIONS BETTY!!!!





I had told her about a specific design I wanted on sweatshirt, down to the color of the sweatshirt. I had not done anything with it because I could NOT find the color sweatshirt I wanted in the exact way I wanted it. Well she and her husband, Carl, found the specific sweatshirt I wanted and had my design put on it!! She brought it to me today. I LOVE IT!! When I can get a picture of me with it on, I will post it. THANK YOU SO MUCH BETTY AND CARL!!!!

My next chemo should be on April 6th.

[> Subject: OOOPS!


Author:
Stacy
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Date Posted: 19:34:08 03/16/06 Thu
After reading this, I noticed that there may have been some confusion as to whether I started Round 2 today or in 21 days.

I started TODAY. Round 3 will be in 21 days.
[> [> Subject: Hi Stacy!


Author:
Cliff
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Date Posted: 23:39:27 03/16/06 Thu
Just thought I'd drop in and say hello. I hope the new chemo regimen works out well. Have you been getting out in your muscle wagon much? It's almost spring--the car cruises will be starting soon!
[> [> [> Subject: WAGON


Author:
Stacy
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Date Posted: 23:59:44 03/16/06 Thu
Yea, I've been driving the wagon quite a bit these days. I get the flow-masters put on it this coming Sunday. I can't wait. The tailpipe that is on it right now comes out right in front of the passenger rear wheel. Naturally this causes a lot of fumes. I don't need that. So the new pipes will come out either behind the tires or out the back. The guy that is doing it for me will make that decision.

I'm anxious for the cruises to get here. That means it will be warm out and I'll be able to go to the track. I won't be racing the wagon but I get to watch.

The main side effects from this chemo have been fatigue and some blood. Other than that I don't mind being on it at all. I sure hope and pray it's working. I'd like to stay on it quite a while.
[> Subject: Miss ya


Author:
Deana
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Date Posted: 10:27:09 03/17/06 Fri
I miss ya honey. When things calm down a little I will be stopping by. Happy St. Patty's Day. Miss you and love you.
[> [> Subject: HI DEANA!


Author:
Stacy
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Date Posted: 12:59:25 03/17/06 Fri
I miss you too! Don't forget that mac and cheese!! LOL!!
[> [> [> Subject: Hello


Author:
Deana
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Date Posted: 19:06:44 03/20/06 Mon
I won't, I promise.
[> Subject: Sweatshirt


Author:
Carl Rumpf
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Date Posted: 12:58:03 03/20/06 Mon
Stacy,
You are more than welcomed for the sweatshirt. Your friendship has meant so much to Betty and I. We wish you all of the best, and look forward to seeing you soon.

Betty and Carl
[> [> Subject: AWESOME!


Author:
Stacy
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Date Posted: 23:40:04 03/20/06 Mon
I was very glad to hear that Betty's mammo came back okay I pray that her CT scan comes back with good news also!

Remind her that we are supposed to get together for lunch sometime soon.
Subject:
SPRING HAS ARRIVED!


Author:
Stacy
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Date Posted: 13:45:55 03/20/06 Mon


Subject: Keeo up the good work!


Author:
Al R
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Date Posted: 19:15:12 03/17/06 Fri
Keep up the fight, you GO girl! Chaffing at the bit to be driving the wagon?
[> Subject: HEY AL!


Author:
Stacy
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Date Posted: 13:00:25 03/17/06 Fri
YOU KNOW IT!
[> [> Subject: Keep that Smile on Your Face


Author:
Charlie & Loretta
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Date Posted: 19:15:12 03/17/06 Fri
Just keep smiling & Get Excited --Your Sanctuary has been saved , the wildlife are returning koz Spring is only days away. Nothing can turn back the seasons-ENJOY .... Birdman Charlie & Birdwatcher Loretta.
Subject: Stacy, I bought those wheels off of Jim (Draglites) just as spares, if you need them for your ride then there yours.


Author:
Guido
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Date Posted: 12:58:02 03/17/06 Fri
[> Subject:
HAPPY ST. PATRICK'S DAY!!!


Author:
Stacy
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Date Posted: 12:58:02 03/17/06 Fri
I'D LOVE TO HAVE THEM!!! Do you know what size they are?
Subject: Happy St. Patrick's Day!


Author:
Char Libertini
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Date Posted: 08:56:53 03/17/06 Fri
Stacey:

You're such a strong person and you inspire me. Thanks for keeping me in the loop with your progress. May God continue to bless and keep you.
Subject: Happy St. Pat's Day


Author:
Jack N. ('61 vette)
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Date Posted: 07:46:39 03/17/06 Fri
Happy Saint Patricks Day to you Stacy! Sounds like you are doing great, and we're following you through other messages and sites. Your doing a great job on Bench Seat, and hopefully you'll be releaved of that duty very soon. Looking to see you out with the wagon with some good weather soon! Hang in there....
Subject:
HAPPY ST. PATRICK'S DAY!!!


Author:
Stacy
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Date Posted: 22:43:49 03/16/06 Thu



Subject: Thinking of you


Author:
Donna
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Date Posted: 22:53:02 03/14/06 Tue
Hi Stacy,
It sure is quiet in here... wondering how you're doing.
I hope you're outside enjoying this weather.
[> Subject: Hey Donna


Author:
Stacy
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Date Posted: 10:04:11 03/13/06 Mon
Yes, I've noticed how quiet it has gotten in here. Maybe everyone has just been outside enjoying this warm weather.

I've been taking my new toy out for rides in this beautiful weather and I plan on taking it out again today!! I don't know if you saw on previous posts but I got a street rod. It's a 78 Malibu wagon.



I'm doing pretty good. I start round 2 of my new chemo this week.

How's your Mom doing? I haven't heard anything lately.
[> [> Subject: Mom


Author:
Donna
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Date Posted: 09:24:36 03/14/06 Tue
Hey - nice picture! Yes, I saw your wagon on previous posts... really sharp looking... if I remember right, Mark surprised you with it.... nice to have a brother like that. :)
Mom (yesterday) had her 3rd chemo of 6. She's tolerating it(Doxil), a bit better than the first regiment(Taxol & Carboplatin). She had a bowel resection during the first surgery, and is still having some problems with that. A lot of immodium. We took her to Atlantic City last week - she had a good time, but it really tired her out. Sometimes she feels like it's one step forward and two back - I know you completely understand that.
Take care - know that we think of you often.
[> [> [> Subject: WAGON


Author:
Stacy
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Date Posted: 22:53:02 03/14/06 Tue
No, I bought the wagon myself. Mark went with me to look at it. I wanted to make sure it was worth the price. Then he did some work on it for me. Actually I surprised him that I even wanted a car.

I'm glad your Mom is doing better and had a good time in Atlantic City.

Just thought I'd post what I have about Doxil in case you didn't have the information.

The following side effects are common, meaning they occur in 30 percent or more of patients taking Doxil:

Low blood counts. Your white and red blood cells may temporarily decrease. This can put you at increased risk for infection and/or anemia.

Nadir: Meaning low point, nadir is the point in time between chemotherapy cycles in which you experience low blood counts.

Onset: 7 days
Nadir: 10-14 days
Recovery: 21-28 days

Hand -foot syndrome (Palmar-plantar erythrodysesthesia or PPE) -skin rash, swelling, redness, pain and/or peeling of the skin on the palms of hands and soles of feet. Usually mild, starting 5-6 weeks after start of treatment. May require reductions in the dose of the medication.

Mouth sores.

These side effects are less common, meaning they occur in 10-29 percent of patients receiving Doxil:

Nausea and vomiting
Low blood counts (low platelet counts). This may put you at an increased risk of bleeding.
Weakness
Hair loss
Constipation
Poor appetite
Diarrhea
Discoloration of the urine (red/orange color) for about 48 hours after treatment
Darkening of skin at the site of previous radiation therapy. (radiation recall - see skin reactions).
Darkening, discoloration of nail beds. (see skin reactions)

A serious but uncommon side effect of Doxil can be interference with the pumping action of the heart. You can receive only up to a certain amount of Doxil during your lifetime. This "lifetime maximum dose" may be lower if you have heart disease risk factors such as radiation to the chest, advancing age, and use of other heart-toxic drugs. No "lifetime maximum dose" has been established for Doxil. You may be given Doxil for as long as the disease does not progress and you show no evidence of heart toxicity.

Subject: Hi Stacy, how do I write Mark? give me your e-mail address.


Author:
Nick
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Date Posted: 14:47:42 03/13/06 Mon
[> Subject: Hey Nick


Author:
Stacy
[ Edit | View ]
Date Posted: 14:47:42 03/13/06 Mon
Hey Nick, my email address is travistrittjunky@hotmail.com. I'll email you the other information you want.
Subject: A BIT OF POETRY


Author:
Stacy
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Date Posted: 13:22:26 03/08/06 Wed
This is something I wrote in 2004 about my Faith in God.


Subject: A LITTLE BIT OF PROSE


Author:
Stacy
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Date Posted: 09:28:36 03/08/06 Wed
I wrote this back in 1989 when I was writing a lot of poetry and prose. I always think it's interesting to read what I wrote because a lot of times it's like my subconscious knew something was going to happen. This one is called "GREAT CRYSTAL BALL". And I tried to make it into a picture.


Subject: Growing old...


Author:
Cliff
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Date Posted: 00:12:24 03/06/06 Mon
Hi Stacy! How was your weekend? How's your mom doing?

I went to the optometrist over the weekend, looking to get my prescription updated and get new contact lenses. He asked if I've noticed that, when wearing my contacts--I'm nearsighted--it's getting harder to read small type up close. YES, unfortunately I've noticed that. He said that, if I wore glasses regularly, it would be time to consider bifocals. AAAHHHHH!!!!!! He said to get a pair of cheap reading glasses if I felt I needed them. (Not yet.) Today, I went to the Eastern Shore for a friend's birthday. He turned 45 this weekend (he's 4 months older than I am). He had to put on reading glasses to read one of his birthday cards. His brother put on reading glasses to read something. These are MY friends, from MY generation. I FEEL LIKE I'M GETTING OLD!
Subject: TRACEY, MY NURSE'S LAST DAY


Author:
Stacy
[ Edit | View ]
Date Posted: 13:22:07 03/04/06 Sat
One of my nurses, Tracey, left Dr. Hahn's office to move on to a bigger and better position at University. She got her master's degree in December as a Nurse Practitioner. I sure will miss her. She's been my nurse since 1999. I wish her lot's of luck although I know she'll do wonderful wherever she goes and whatever she does. A group of us got together and went out on February 24th to celebrate her new beginnings and wish her farewell.






Subject: Hey there, Stacy girl


Author:
Cliff
[ Edit | View ]
Date Posted: 22:56:47 03/01/06 Wed
How was your weekend? How is chemo going? How's your mom doing? Who put the bop in the bop-bop-she-bob? What did Della wear?
[> Subject: HEY CLIFF


Author:
Stacy
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Date Posted: 06:48:29 03/01/06 Wed
Weekend was fine. Chemo is fine. Mom is doing well with a cane. You did.
[> [> Subject: Hey


Author:
Cliff
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Date Posted: 22:56:47 03/01/06 Wed
How is the wagon progressing?

Speaking of cars....have you heard of the new Bugatti Veyron? It's the new holder of the title, "world's fastest production car." Check it out:

http://www.caranddriver.com/article.asp?section_id=19&article_id=10108

http://www.rsportscars.com/eng/cars/bugatti_veyron.asp
Subject: What's up


Author:
Connie
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Date Posted: 06:54:30 03/01/06 Wed
What's up Stacy? How is chemo going?
How is your mother's foot?
or in other words... What's up???
I get worried when I don't see you posting....(even if I am not great at posting myself)
[> Subject: THE SKY LOL


Author:
Stacy
[ Edit | View ]
Date Posted: 06:54:30 03/01/06 Wed
Hey Connie. Chemo is going okay. I was in the ER one night and it through off my schedule. So I'm still in round one. I'll get my Avastin this Thursday then next week I'm off. After that, barring no problems, I start round two.

Mom's foot is healing. By the end of the first week, she was putting some weight on it and she was walking with a cane. She went back to work this week. She has to find creative ways to prop her foot up though. It's a bit swollen when she comes home so she ices it. She's always healed quickly.

Nothing to worry about with me not posting as often. Just not too much to say. Kinda hoping people post to me so I can answer questions.
Subject: MOM


Author:
Stacy
[ Edit | View ]
Date Posted: 10:33:47 02/26/06 Sun
Just wanted to give an update on Mom (Barbara). She broke her foot tonight while trying to hold the door open for me as I carried in groceries. She slipped out the door and twisted her foot on my outdoor mat. She went to a Patient First where they x-rayed it and said the long bone (metatarsal) attaching to the pinky toe on the right foot is broken all the way through. She's supposed to call her orthopedic doctor tomorrow.

God love her, it's always something.......

[> Subject: Oh geez!


Author:
Cliff
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Date Posted: 23:59:59 02/20/06 Mon
Hi Stacy! Be sure to tell Stacy's Mom I said hello, and that I hope her foot heals quickly!
[> [> Subject: MOM'S FOOT


Author:
Stacy
[ Edit | View ]
Date Posted: 23:01:58 02/21/06 Tue
Hey Cliff! Mom went to the orthopedic doctor today. He said if she had to break a bone in her foot, that is the best one to break. She's allowed to do whatever she CAN do. He said her foot will tell her what she can and cannot do. Right now it's still very painful and she can't put any weight on it.

This is a graphic of which bone it is. From what she told me, I would think the broken area is probably closest to where it says "Jones Fracture" although I don't know if it is really a Jones Fracture.


[> Subject: Barbara's foot


Author:
Mary White
[ Edit | View ]
Date Posted: 15:10:05 02/21/06 Tue
I'm so sorry to hear about this. Barbara sure does have trouble those feet. How many foot crises have there been anyway? I seem to remember seeing her in one of those boots a couple of times at least. Give her my best wishes for a speedy healing.
[> [> Subject: FEET TROUBLE


Author:
Stacy
[ Edit | View ]
Date Posted: 20:42:22 02/21/06 Tue
She broke her leg,she's had 3 separate foot surgeries, and now a broken foot. The surgeries and the broken foot are on the right. The broken leg was on the left.
[> Subject: Oh come onnnnnn


Author:
Al R
[ Edit | View ]
Date Posted: 17:22:10 02/21/06 Tue
Are we supposed to believe that? Are you sure you didn't just knock her down?.....lol
[> [> Subject: YEA THAT'S IT


Author:
Stacy
[ Edit | View ]
Date Posted: 20:39:59 02/21/06 Tue
No actually I think my Mom wants to be in competition with me for attention. I go into the hospital... she goes in the hospital... I cough up blood... she breaks her foot.... LOL!!
[> [> [> Subject: Yeah, right!


Author:
Cliff
[ Edit | View ]
Date Posted: 23:50:45 02/22/06 Wed
Sounds like a "competition" I heard George Carlin talk about years ago. He was updating the audience on the standings in the "Comedians' Health Sweepstakes." He said, "I lead Richard Pryor in heart attacks, 2 to 1, but Richard leads me in burning yourself up, 1 to nothing." He went on to say, "Richard had a heart attack, so I decided I'd have one. Then Richard lit himself on fire, and I said, 'F*ck that, I'm having another heart attack!'"
[> Subject: Poor Mom!!


Author:
Jenn
[ Edit | View ]
Date Posted: 10:33:47 02/26/06 Sun
Hey Stacy!! How's your Mom feeling any better??
Subject: CHEMO


Author:
Stacy
[ Edit | View ]
Date Posted: 00:11:29 02/18/06 Sat
Remember I couldn't get chemo last week? And if the bleeding from my lungs didn't stop I couldn't get it this week either? Well the bleeding stopped and I got chemo.

I asked him if he's going to keep me on the same 6-week regiment or if he was going to try to combine them so I could come in every 2 or 3 weeks instead. He has decided to keep me on the same regiment at least until we find out if the drugs are working or not. He didn't say when I would get another CT scan. I'm thinking sometime after the next round.
[> Subject: HEY!


Author:
Cliff
[ Edit | View ]
Date Posted: 22:57:49 02/16/06 Thu
Never hurts to end the week on a high note, does it? Good deal! I know you run into a lot of stumbling blocks on your path through all this, but hopefully you've kicked another one aside!
[> [> Subject: HEY CLIFF


Author:
Stacy
[ Edit | View ]
Date Posted: 00:07:17 02/18/06 Sat
Yea it was a good thing getting chemo and still no coughing up blood. I have been sleeping A LOT though.
[> Subject: hello


Author:
Connie
[ Edit | View ]
Date Posted: 23:50:11 02/16/06 Thu
Hey Stacy
I think you got a great Valentines gift by being able to have the chemo. It sounds weird to say one is glad to get chemo, but gee don't have to worry about coloring ones hair. That is what I told the nurses on Wednesday. They didn't think it was to funny.
What side effects do you get with this chemo?
Sure thinking of you, Stacy.
But please, you don't have to keep sending me the weight you lose. lol
[> [> Subject: HI CONNIE!


Author:
Stacy
[ Edit | View ]
Date Posted: 09:20:23 02/17/06 Fri
Everyone says "it's just hair, it'll grow back again. That's the least of your problems". And everyone says something about saving money on shampoo, conditioner, coloring and all the other hair supplies. I don't really save money because I have so much shampoo already. Plus I continue to use shampoo on my scalp. It keeps the scalp softer for when the hair starts growing in. I think to myself "oh yea?? YOU lose YOUR hair 4 times and see if it starts to get on YOUR nerves. I appreciate the sentiment but GOOD GRIEF, 4 TIMES!! One thing is for sure, I certainly have a lot of experience with it! Not griping to you but after 4 times, it's a pain. Once it's gone I tolerate it better, it's just the knowing it's going to come out again that bothers me.

I'm always happy to get me chemo. It's the only thing that's going to work and it's the only way for me to feel like I'm doing something.

Side effects I'm having? I still get fatigued. I don't have much of an appetite. And I coughed up a lot of blood and had to go to the ER. That was because bleeding can be a risk so you have to really watch for it. Being on coumadin made it hard for healing so the doctor took me off the blood thinner. The bleeding stopped within a day.

It was great hearing from you. How are you doing these days?
[> [> [> Subject: Update


Author:
Connie
[ Edit | View ]
Date Posted: 22:57:13 02/17/06 Fri
Awww you are so special. I didn't mean to sound glib about losing the hair, but I am/was tired of plucking away at the hair on my face. haaaa haaa
Actually, I am celebrating a year since my surgery. Had a lumpectomy, but then because of all the tissue taken, they reclassified it as a masectomy for billing. haaa haa Was because of the muscle also taken and lymph nodes taken. But was told that the swelling and pain should go away in a year from now. I thought one year of the swelling and pain, but surgeon now says two. Go figure. But just whinning...nothing compared to what you have been thru.

Have you seen the following: A friend sent it to me.
The Five Finger Prayer

1. Your thumb is nearest you. So begin your prayers by praying for those closest to you. They are the easiest to remember. To pray for our loved ones is, as C. S. Lewis once said, a "sweet duty."

2. The next finger is the pointing finger. Pray for those who teach, instruct and heal. This includes teachers, doctors, and ministers. They need support and wisdom in pointing others in the right direction. Keep them in your prayers.

3. The next finger is the tallest finger. It reminds us of our leaders. Pray for the president, leaders in business and industry, and administrators. These people shape our nation and guide public opinion. They need God's guidance.

4. The fourth finger is our ring finger. Surprising to many is the fact that this is our weakest finger; as any piano teacher will testify. It should remind us to pray for those who are weak, in trouble or in pain. They need your prayers day and night. You cannot pray too much for them.

5. And lastly comes our little finger; the smallest finger of all which is where we should place ourselves in relation to God and others. As the Bible says, "The least shall be the greatest among you." Your pinkie should remind you to pray for yourself. By the time you have prayed for the other four groups, your own needs will be put into proper perspective and you will be able to pray for yourself more effectively.
I'll be in touch........
[> [> [> [> Subject: LOVE THOSE WHISKERS!


Author:
Stacy
[ Edit | View ]
Date Posted: 00:09:39 02/18/06 Sat
I don't miss the whiskers either!

I've never seen the five-finger prayer but I love it. Thanks for posting it!!
[> Subject: You Are in my prayers Stacy


Author:
GrammyApples
[ Edit | View ]
Date Posted: 20:40:16 02/17/06 Fri
Stacy,
Your courage and strength is unimaginable to me.
May God and His angels walk with you day by day hon.
You are in my thoughts and prayers.
Love & Huggers,
GrammyApples
[> [> Subject: THANK YOU


Author:
Stacy
[ Edit | View ]
Date Posted: 00:11:29 02/18/06 Sat
I need all the prayers I can get! I really appreciate your thoughts and prayers. They are where I get my strength from!!
Subject: WOW


Author:
Stacy
[ Edit | View ]
Date Posted: 22:41:13 02/16/06 Thu
Ya think I've lost a little weight since July 2005? I've lost 65 lbs. At least 25 of the lbs were from the steroid I was on.




[> Subject: AND I CERTAINLY LOOK BETTER NOW


Author:
Stacy
[ Edit | View ]
Date Posted: 22:41:13 02/16/06 Thu
Remember Steven's Johnson Syndrome? Looking at these pictures now, boy I think I looked horrible. When it was happening, I was used to seeing it and it didn't look that bad to me. But NOW it does.











I HOPE THAT NEVER HAPPENS AGAIN!
Subject: CHEMO NURSE


Author:
Stacy
[ Edit | View ]
Date Posted: 18:24:26 02/16/06 Thu
MY CHEMO NURSE TRACEY





Subject: HAPPY VALENTINE'S DAY!!


Author:
Stacy
[ Edit | View ]
Date Posted: 23:12:27 02/14/06 Tue





[> Subject: Happy Valentines Day, Stacy!


Author:
Cliff
[ Edit | View ]
Date Posted: 23:12:27 02/14/06 Tue
Hi Stacy! Hope you enjoyed your day. I took my "valentine" in a dinner cruise on the Lady Baltimore on Saturday night. That was the first time I went on a harbor cruise during a snowstorm! Are you ready for a big snow melt tomorrow? I hear the temperature may get into the upper 50's.
Subject: 16 INCHES OF SNOW AT MY HOUSE


Author:
Stacy
[ Edit | View ]
Date Posted: 12:32:52 02/12/06 Sun
ON MY DECK



PONGO



PONGO



ZOIE


THE WAGON AND THE X-TERRA



THE WAGON AND THE X-TERRA



OUT MY FRONT DOOR


Last edited by author: Sun February 12, 2006 12:32:52   Edited 1 time.

Subject: UPDATE


Author:
Stacy
[ Edit | View ]
Date Posted: 20:35:42 02/11/06 Sat
Today (Wednesday) I started coughing up a lot of blood around 4:00 pm. I called my doctor. He told me to go to the ER so I did. They checked my blood and did x-rays. The results all came back normal. The ER doctor talked to my doctor. The discharge instructions were to go home and see Dr. Hahn tomorrow. This is supposedly one of the serious side effects I need to look out for with the new chemo I'm on. I'm not sure what will happen tomorrow but I'll keep everyone up to date.

I had to see my doctor Tuesday because I've been having a lot of stomach pain mostly after eating. Plus I've actually thrown up a couple of times. He put me on Zantac for two days and if I still have problems, he wants me to have an endoscopy. That means they'll put a scope down my throat and into my stomach to find the culprit.
[> Subject: Good wishes...


Author:
Cliff
[ Edit | View ]
Date Posted: 23:28:13 02/08/06 Wed
Hey Stacy--I hope this is indeed just a side effect of the chemo drug, and not an indication of some other problem. That's not to say it's a good thing, but it's better than finding out that it's caused by something unexpected.
[> Subject: Hi ya from Lobsy


Author:
Lobsy
[ Edit | View ]
Date Posted: 00:22:12 02/09/06 Thu
Hi ya Stacey.... sorry to hear you have not been well so early in this new year. Hope things will pick you for you soon. Good luck with the Zantac. Cheers Lob
[> [> Subject: DOCTOR


Author:
Stacy
[ Edit | View ]
Date Posted: 20:19:11 02/09/06 Thu
I went to the doctor today. He wants me to completely go off of the blood thinner (Coumadin). He said sometimes it can metabolize differently in the body when taking the Avastin making it very difficult to stop bleeding. I will not get my chemo this week. If the bleeding stops all together, I'll get chemo next week. I still have some bleeding from the nose and the lungs but not as much as yesterday. Thank GOD!!

Since the Zantac is helping my tummy somewhat, I'll just stay on that for now. I may still end up with an endoscopy but not yet.
[> [> [> Subject: Thinking of you


Author:
Connie
[ Edit | View ]
Date Posted: 20:35:42 02/11/06 Sat
Stacy
Sure hope the weekend give you some strength back from the bad week you have been having. Hoping that the bleeding stops for you. Sure sounds like you have a doctor that keeps up on what is happening. Thinking of you.
Connie
Subject: Thanks Stacy


Author:
Al R
[ Edit | View ]
Date Posted: 17:13:22 02/05/06 Sun
Thanks for the visit on Friday it was muuuuuuuuuuuuch appreciated!
[> Subject: HI AL


Author:
Stacy
[ Edit | View ]
Date Posted: 17:13:22 02/05/06 Sun
You're very welcome. I enjoyed talking with Peg. And of course talking with you.

I'll get that wagon up to your place soon.
Subject: Hey there


Author:
Steve
[ Edit | View ]
Date Posted: 11:21:26 02/05/06 Sun
Hey Stacy hows the car coming got it all tuned up for warm weather get the carb and exhaust all done ???
[> Subject: HEY STEVE


Author:
Stacy
[ Edit | View ]
Date Posted: 11:21:26 02/05/06 Sun
The car is running great! Mark put a TorkerII aluminum intake and a 600 Holley 4-barrel on it. I'll get the flowmasters put on it in a few weeks. I'm waiting for my Dad's friend to be able to do that.

Mark had to do some other things to it that were minor but aggravating for him but it really helped me. We have speakers hooked up to the radio but it only plays when it wants to. That's not too much of a worry though, I like listening to the car run when I'm driving it!

I'll be putting vanity tags on it. I just can't decide if I want LIL SIS or LILSISS on it. LILSISS because it's an SS. What's your opinion?

I love driving it. It rides so smooth and the steering is great. I has power steering. The only thing that I really hate about it is, it doesn't have sun visors! But that wasn't enough to make me not want the car.
Subject: JUST WHAT HAVE I BEEN THROUGH?


Author:
Stacy
[ Edit | View ]
Date Posted: 16:58:27 02/04/06 Sat
Sometimes I just have to remind myself.....


SURGERIES:

7/20/99 – Left breast lumpectomy and left axillary lymph node excision – qty 3

8/19/99 – 1st Port-a-cath insertion

2/17/00 – Left breast mastectomy

11/2/00 – Right breast – remove 2 benign lumps

1/5/01 – Port-a-cath removal

01/2003 – Right breast – remove 1 benign lump

8/8/03 – Bronchoscopy and Mediastenoscopy

9/3/03 – 2nd Port-a-cath insertion


CHEMOTHERAPY / RADIATION HISTORY:

7/30/99 – 10/1/99 Cytoxan and Adriamycin

10/22/99 – 12/23/99 Taxol

3/30/00 – 5/17/00 Radiation treatments

9/4/03 – 12/5/03 Taxotere

12/26/03 – 11/24/04 Gemcitabine

12/6/04 –12/6/04 Xeloda 3000mg
12/27/04 Xeloda 3500mg
1/20/05 – 6/?/05 Xeloda 4000mg

6/7/05 – 6/29/05 Radiation to brain = 18 full brain tx’s

8/12/05 – 12-30-05 Navelbine

1/12/06 – current Abraxane & Avastin


METZ – to both lungs, paratracheal lymphs including in the aortic arch, axillary lymph, left adrenal gland lymph, and brain


ADDITIONAL PROBLEMS:

Superficial blood clot in right leg in 2003

Blood clot in Superior Vena Cava 2005. Will always have.

Fluid in the lungs and around the heart.

Seizure on June 5, 2005. Included an ambulance ride and an overnight stay in the hospital.

Steven's Johnson Syndrome in July 2005. Included a 14 stay in the hospital.


I definitely believe I have many Angels around me 24/7 and prayers are being heard. Please keep praying!

Last edited by author: Fri February 03, 2006 22:31:51   Edited 1 time.

[> Subject: Wow...


Author:
Cliff
[ Edit | View ]
Date Posted: 16:58:27 02/04/06 Sat
I think your treatment list is longer than my grocery list! You're a very strong person.
Subject: ROUND 4


Author:
Stacy
[ Edit | View ]
Date Posted: 22:56:41 02/02/06 Thu
My hair started falling out AGAIN this passed Saturday. Sure am seeing a lot of scalp again. This makes ROUND 4 of losing my hair!!!!!!

Everyone says "it's just hair, it'll grow back again. That's the least of your problems". I think to myself "oh yea?? YOU lose YOUR hair 4 times and see if it starts to get on YOUR nerves. I appreciate the sentiment but GOOD GRIEF, 4 TIMES!! One thing is for sure, I certainly have a lot of experience with it!
[> Subject: BUT.....


Author:
Cliff
[ Edit | View ]
Date Posted: 22:56:41 02/02/06 Thu
...think of the money you're saving! Shampoo, conditioner, hairspray, stylist--all things you don't have to pay for!
Subject: HE SAW HIS SHADOW


Author:
Stacy
[ Edit | View ]
Date Posted: 07:58:12 02/02/06 Thu

Last edited by author: Thu February 02, 2006 07:58:12   Edited 1 time.

Subject: MY NEW TOY


Author:
Stacy
[ Edit | View ]
Date Posted: 21:47:49 01/31/06 Tue
MY NEW TOY



[> Subject: This is trouble-Stacy and Mark Preston-The Wagon Masters. Watch out guys, if somebody needs some horsepower in a wagon, she knows where to go!!!!!!


Author:
Prostreetbird
[ Edit | View ]
Date Posted: 17:19:22 01/28/06 Sat
[> [> Subject: heres Stacy & her 78 Malibu Wagon!


Author:
Mark
[ Edit | View ]
Date Posted: 21:32:46 01/28/06 Sat

[> [> Subject: heres Stacy & her 78 Malibu Wagon!


Author:
Mark
[ Edit | View ]
Date Posted: 21:33:26 01/28/06 Sat

[> [> Subject: YEP


Author:
Stacy
[ Edit | View ]
Date Posted: 00:34:19 01/29/06 Sun
I sure do!! He's already had to do some work on it. I'll be glad when he get's that pig of a carb out of it and put's the new intake and Torker II in it!! Then I'll be delighted when the Flowmasters are on it!!

I'm loving my new toy but it'll be better when I can drive it. LOL!!
[> [> [> Subject: Well well well...


Author:
Cliff
[ Edit | View ]
Date Posted: 01:17:51 01/31/06 Tue
Very nice! My offer for dinner and a car cruise still stands, but with one modification: YOU'RE DRIVING!
[> [> [> [> Subject: DEEP SUBJECT


Author:
Stacy
[ Edit | View ]
Date Posted: 07:56:14 01/31/06 Tue
You KNOW I'm gonna be out there this year!! And I'll take you up on your offer.
[> Subject: Very cool car Stacy!


Author:
Al R
[ Edit | View ]
Date Posted: 09:21:06 01/30/06 Mon
I liked it the minute I saw it on Mark's site. You'll have to drive over and show it to me
[> [> Subject: THANK YOU


Author:
Stacy
[ Edit | View ]
Date Posted: 07:54:08 01/31/06 Tue
I sure will!!
[> Subject: hey girlfriend


Author:
Bonnie
[ Edit | View ]
Date Posted: 21:47:49 01/31/06 Tue
I can't see the pics but i bet it's a car...I'll see ya soon...got some long overdue news.

be strong
Bon
Subject: VGLDSW Day!!


Author:
Stacy
[ Edit | View ]
Date Posted: 22:46:26 01/29/06 Sun
Today is International Very Good Looking, Damn Smart Woman's Day.

Remember this motto to live by: Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body, but rather to skid in sideways, chocolate in one hand, wine in the other, body thoroughly used up, totally worn out and screaming "WOO HOO what a ride!"
[> Subject: words to live by


Author:
Connie
[ Edit | View ]
Date Posted: 22:46:26 01/29/06 Sun
Wow. I love this. Thanks Stacy.
Subject: Hey There!!


Author:
Jenn
[ Edit | View ]
Date Posted: 11:31:21 01/27/06 Fri
Hey There Stacy!! Thought I would drop by to say hello & see how you are doing. It has been busy around here I don't evem have time to get on the computer sometimes. Dave & I are getting the wonderful cold that is going around & Dana has it along with pink eye in both her eyes & a really bad ear infection. So it's been a real workout trying to keep her comfortable & keeping myself as healthy as possible for the baby. Just wanted you to know we are thinking & praying for you! Take care of yourself!
Subject: FYI


Author:
Stacy
[ Edit | View ]
Date Posted: 22:48:53 01/26/06 Thu
I received an email today that I wanted to share with other people.

It read:

In November, a rare kind of breast cancer was found. A lady developed a rash on her breast, similar to that of young mothers who are nursing. Because her mammogram had been clear, the doctor treated her with antibiotics for infections. After 2 rounds, it continued to get worse, so her doctor sent her for another mammogram. This time it showed a mass.

A biopsy found a fast growing malignancy. Chemo was started in order to shrink the growth; then a mastectomy was performed; then a full round of Chemo; then radiation. After about 9 months of intense treatment, she was given a clean bill of health. She had one year of living each day to its fullest.! Then the cancer returned to the liver area. She took 4 treatments and decided that she wanted quality of life, not the after effects of Chemo. She had 5 great months and she pla nned each detail of the final days. After a few days of needing morphine, she died. She left this message to be delivered to women everywhere:

Women, PLEASE be alert to anything that is not normal, and be persistent in getting help as soon as possible.

Paget's Disease: This is a rare form of breast cancer, and is on the outside of the breast, on the nipple and aureole. It appeared as a rash, which later became a lesion with a crusty outer edge. I would not have ever suspected it to be breast cancer but it was. My nipple never seemed any different to me, but the rash bothered me, so I went to the doctor for that. Sometimes, it itched and was sore, but other than that it didn't bother me. It was just ugly and a nuisance, and could not be cleared up with all the creams prescribed by my doctor and dermatologist for the dermatitis on my eyes just prior to this outbreak. They seemed a little concerned but did not warn me IT could be cancerous.

Now, I suspect not many women out there know a lesion or rash on the nipple or aureole can be breast cancer. Mine started out as a single red pimple on the aureole. One of the biggest problems with Paget's disease of the nipple is that the symptoms appear to be harmless. It is frequently thought to be a skin inflammation or infection, leading to unfortunate delays in detection and care.

What are the symptoms?

1. A persistent redness, oozing, and crusting of your nipple causing it to itch and burn. (As I stated, mine did not itch or burn much, and had no oozing I was aware of, but it did have a crust along the outer edge on one side.)

2. A sore on your nipple that will not heal. (Mine was on the aureole area with a whitish thick looking area in center of nipple).

3. Usually only one nipple is effected. How is it diagnosed? Your doctor will do a physical exam and should suggest having a mammogram of both breasts, done immediately. Even though the redness, oozing and crusting closely resemble dermatitis (inflammation of the skin), your doctor should suspect cancer if the sore is only on one breast. Your doctor should order a biopsy of your sore! to confirm what IS going on.

My breast cancer has spread and metastasized to my bones after receiving mega doses of chemotherapy, 28 treatments of radiation and taking Tamaxofin. If this had been diagnosed as breast cancer in the beginning, perhaps it would not have spread..."

TO ALL READERS from Stacy:

After reading about Paget's disease, I'm not sure of the truth in this. Paget's disease seems to be a bone disease that does not have a cure. Maybe this person ended up with Paget's Disease because her cancer spread to her bones. But I wanted to send the message just in case they have found a new type of breast cancer.

Last edited by author: Thu January 26, 2006 22:48:53   Edited 1 time.

Subject: FYI


Author:
Stacy
[ Edit | View ]
Date Posted: 16:24:22 01/24/06 Tue
A friend of mine said to me that they can't begin to imagine how I must be feeling right now (after finding out my CT results). Well, I thought I'd share my answer with you.

I'm not thrilled about my CT results either. I CAN tell you how I'm feeling.... I don't like the cancer growing and moving into other places but I do feel like I'm doing everything I can. In life I try not to worry about the things I can't do anything about. I try not to let things get to me. It really does help me think about things objectively. Whether it's about my cancer or anything else. I also try not to worry about the things I can do something about. I just do what I need to. As for my cancer, I've put myself in my doctor's hands but mostly I've put myself in God's hands. Of course I pray for a miracle. My upbeat attitude is really just determination to be here. I want to live. I want to live for me. I want to live for my family. I want to live for my babies. I never want to put my family through losing me. It's bad enough having to put them through what I'm going through. I know they worry and I know they love me. They hate it. So naturally I hate being the one putting them through it even though it's not my fault. I've never been too proud to ask for help or to let others help me that want to as long as I need it. As independent as I am, I still appreciate help when I need it. One of my neighbors has taken it upon himself to take my trash to the curb on trash days. I throw it out front of my door and he takes it to the curb. I never asked him to do it but I let him do it because it is a big help. I'm not as strong as I was plus I'm afraid to strain too much with having a blood clot in my chest. My Mom and my Aunt have really been a big help too.

This is a genuine answer and I appreciate this friends offer to help me if I need it. Feeling the way that I do about things has made me a happier person and I really would love to see other cancer patients feel the same way or even better about their situation. It's a nasty disease and it's not forgiving so as the "host" of this disease, I'd like to be an exception to the rule. And I'd like to try to help other's feel the same way.
[> Subject: Stacy's attitude


Author:
Barb Pino aka Stacy and Mark's Mom
[ Edit | View ]
Date Posted: 12:45:38 01/19/06 Thu
For those of you who don't get to 'see' Stacy - she is as strong and as upbeat as she 'sounds' in these messages. She has always been a very strong and confident person, but even I never knew just how "tough" she really is. She has a will that a lot of people never even begin to imagine. Not just because she is my Daughter, but she makes me so proud of her, in so many ways. She has a heart of gold and does not like to be the reason any one suffers any...so all of you who do know her, you are very lucky to have her in your life. Say a special prayer for her, and please always say a prayer for her whenever she crosses your mind.

Hey Kiddo - I sure do love you and you sure are one great person. You make mt life a lot easier...so never think for even a minute that you are the cause of a lot of pain...you more than make up for any hard days that I have ever had because of this monster. I'm with you..we are going to show this thing just who is in charge. None of us are even close to being finished with the fight....

Love you.....and thanks, all of you who care and check on her...
[> [> Subject: AWWW


Author:
Stacy
[ Edit | View ]
Date Posted: 09:23:18 01/20/06 Fri
Thank you so much for your wonderful words! I just love you to pieces!
[> [> [> Subject: Go, Stacy!


Author:
Cliff
[ Edit | View ]
Date Posted: 20:40:40 01/23/06 Mon
Hey Stacy

You have a lot of friends behind you! If you even considered giving up your positive attitude, I'm sure there would be a lot of feet kicking you in the butt.

Oh.... Hi, Stacy's Mom!
[> Subject: You're my hero! My offer still stands,don't be afraid to use it!


Author:
You know who...lol
[ Edit | View ]
Date Posted: 16:24:22 01/24/06 Tue
Subject: PICS FROM MY BIRTHDAY


Author:
Stacy
[ Edit | View ]
Date Posted: 20:42:31 01/23/06 Mon
WE HAD STEAMED CRABS AT BILL'S TERRACE INN!! YUMMY!!

ME AND THE OWNER STEVE



ME AND AUNT NANCY



ME AND MOM



ME AND MARK



ME AND DAD


Subject: UPDATE


Author:
Stacy
[ Edit | View ]
Date Posted: 22:42:14 01/18/06 Wed
Since Sunday night, I've been coughing up a little blood and blowing some out my nose. Not much from either place but it is there. Since my doctor wants me to keep a close eye out for bleeding I called my nurse today. She talked to Dr. Hahn about my symptoms. He said he thinks I have a bit of bronchitis so he wants to prescribe an antibiotic for a week. We will go from there.
[> Subject: Hey!


Author:
Cliff
[ Edit | View ]
Date Posted: 22:03:08 01/17/06 Tue
Hey! You're not supposed to get brochitis when you're getting chemo. It's a fairness issue--that's too many things at once! You're hogging all the illnesses, and depriving others of their fair share!
[> [> Subject: SO I'M SELFISH


Author:
Stacy
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Date Posted: 00:07:23 01/18/06 Wed
Some body has to do it. If I have it maybe someone else won't.
[> [> [> Subject: BUT....


Author:
Cliff
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Date Posted: 22:42:14 01/18/06 Wed
I'd rather it not be YOU! Well, I'd rather it not be anyone. But if it HAS to be someone, I'd rather it be someone who annoys me, like Martha Stewart, or Joan Rivers, or Regis Philbin, or that car dealer guy who does those awful commercials--Scott Donahoo, I think.....
Subject: Belated Happy Birthday


Author:
Connie
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Date Posted: 22:52:07 01/16/06 Mon
Lordy Lordy - you are 40 ???? Wish I was 40.... haaa Being 50 sounds soooo old. Sorry to hear you have to go thru some more chemo. One advantage I found when I lost my hair, was that I didn't need to buy as much shampoo. Have to try keep a positive attitude about this awful thing called cancer. Hope the new year brings better news after the chemo
I have been trying to catch up on my posting as a new years resolution. I don't think I have been doing so good. Can you tell haaa haa.
I'm thinking of you, even if I am not good about posting.
Connie
[> Subject: HI CONNIE


Author:
Stacy
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Date Posted: 17:42:25 01/14/06 Sat
I think I'm getting used to this chemo thing. I've been going through it for almost 2 1/2 years now. Add in a little radiation time and a couple of hospital visits.

This will make the 4TH time losing my hair. It just started coming back in too. That part I'm pretty tired of. I still use shampoo on my head though. It's much more gentle on the scalp. Plus when hair does come in, it makes the hair softer.

Thank you for the birthday wishes. Now that I AM 40 I don't really mind. I dreaded turning 40 but it's here now. Nothing I can do about it.

I sure hope 2006 is a better year for all of us!! How have you been?
[> [> Subject: hello


Author:
Connie
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Date Posted: 22:52:07 01/16/06 Mon
When my hair first came back it started out as curly/wavey, but very quickly, it changed to straight. I'm keeping my wigs to surprise some people, once in a while. (When I feel risque. haaa haa)
I have passed on your hints about the benadryl. Has helped me and others. Talk to you again.
Connie
Subject: howtheheckareya??


Author:
Patty
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Date Posted: 10:39:17 01/16/06 Mon
Hey Lady,
I have not heard from you in FOREVER. Thanks for the message on my board over Christmas, I am sorry I missed you. My offer for lunch is still open ANY TIME. Give me a call and we will set up the date and I will come and pick you up. Miss you like the dickens!! I'M GUNNA BE A GRANDMA AGAIN!! Chris and Carey are pregnant :) Don't know if I had told you that or not... I forget more and more these days...
You got my number,
Patty
Subject: NEW CHEMO UPDATE


Author:
Stacy
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Date Posted: 22:16:32 01/15/06 Sun
I started my new chemo today. The nurses called me to say that my Doctor would not be in tomorrow (Friday) and he wanted to see me before I started it. He also wanted to be in the office while I got it. He said that I should watch out for bleeding (i.e., bloody nose, coughing up blood…), problems breathing, chest pain, and pain associated with blood clots. He does not expect me to have these problems but they are the most serious. He is cautious simply because I’ve been on so much chemo over the last two and a half years that there is a lot of toxicity in my body.

I may go back to going on Thursdays since I saw so many friends today. It would have been nice to have people there that know you had anything happened. Maybe occasionally go on Fridays so I can see those friends as well. Fortunately, all went well with the actual infusion of the drugs.

Each time I go for chemo, I will receive pre-medications to make sure there are no reactions to the drugs. This is what I will receive:

Decadron (Dexamethasone)– 10 mg’s – for anti-nausea


Zantac – 50 mg’s – for my stomach


Anzemet – 100 mg’s – for anti-nausea


Benadryl – 50 mg’s – for allergic reactions



I will continue to receive the Aranesp (for re-building red blood cells) once every two weeks. If the numbers drop enough, I will receive it once per week.


My new chemo drugs are:






This new chemo will be a six-week schedule until the doctor sees how my body reacts to the two new drugs.

Each round (schedule) will be as follows:

Week one - Abraxane and Avastin
Week two - off
Week three - Avastin
Week four – Abraxane
Week five - Avastin
Week six – off

Week 7 - Start all over again


The Abraxane is 380 mg’s and the Avastin is 388 mg’s.

Fortunately, I will be able to receive ALL drugs mentioned by IV through my port-a-cath.



So far, this evening I have had a strange side effect. After sitting for a little while then standing up, I felt “tipsy” for a few minutes. I would stumble to the left. In addition, my ears were “closing up” similar to how it feels before you pass out. However, I did not feel like I was going to pass out. I checked my blood pressure and it was up a little bit. If I continue to have problems with this tomorrow, I will call the nurses.

Last edited by author: Fri January 13, 2006 00:14:07   Edited 2 times.

[> Subject: Hmmm.....


Author:
Cliff
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Date Posted: 22:16:32 01/15/06 Sun
That sounds like quite a cocktail they're mixing for you! Did they remember the grenadine? Maybe they could try a Long Island Ice Tea instead!
Subject: A BIT WINDY FOR YOU?


Author:
Stacy
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Date Posted: 21:46:30 01/14/06 Sat

Subject: FRIDAY THE 13TH


Author:
Stacy
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Date Posted: 01:31:06 01/13/06 Fri

Subject: CT SCAN RESULTS


Author:
Stacy
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Date Posted: 18:52:56 01/12/06 Thu
I went to the doctor’s office today for my CT scan results. Unfortunately, the news was not good. I will be changing chemo drugs next week. I will be put on Avastin and Abraxane. I will be going once every two weeks and should be in the office for about 3 hours each time. I will lose all hair again, this time on my entire body.

This is a summary of what was found:

1. Fluid in the lungs. *

2. Fluid around the heart. *

3. All of the masses have increased in size.

4. There are several more small masses that have developed. *

5. The masses in the lymph nodes in my chest have also increased in size. They are real close to the esophagus and wind pipe.

6. Small node on the left adrenal gland. * (The adrenal glands are orange-colored endocrine glands which are located on the top of both kidneys.)

7. Swelling under the skin in all the tissues seen on CT scan. *

8. Skin thickening of the chest wall where I had the mastectomy. *

9. A few small nodes have appeared in my armpit area (axilla). *

* = new issues

Lately I’ve been having chest pains when I lay down. I figured it was from the blood clot. It seems that it is partly from that but also because of the increased size of the masses in the center of my chest.

I supposed I could have received much better news but I’m still determined to beat this thing. Or at least manage it WELL for a very very very long time. To be feeling as well as I am, I sure my faith in God has a lot to do with that. I also believe all of your prayers are helping.
[> Subject: CHEMO SIDE EFFECTS


Author:
Stacy
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Date Posted: 22:22:17 01/06/06 Fri
The following side effects are common (occurring in greater than 30%) for patients taking Abraxane:

Low blood counts. Your white and red blood cells may temporarily decrease. This can put you at increased risk for infection and/or anemia.
Hair loss.
Nausea.
Abnormal ECG (electrocardiogram)
Peripheral neuropathy (numbness and tingling of hands and feet)
Arthralgias and myalgias, pain in the joints and muscles. (see pain) Usually temporary occurring 2-3 days after Abraxane, and resolve within a few days.
Weakness and fatigue.
Increases in blood tests measuring liver function. These return to normal once treatment is discontinued.

The following are less common side effects for patients receiving Abraxane:

Infections
Diarrhea
Vomiting
Mouth sores
Swelling of feet or ankles
Shortness of breath
Eye problems
[> [> Subject: AVASTIN SIDE EFFECTS


Author:
Stacy
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Date Posted: 22:24:44 01/06/06 Fri
The following side effects are common (occurring in greater than 30%) for patients taking AVASTIN:

Generalized Weakness
Pain
Abdominal pain
Nausea & vomiting
Poor appetite
Constipation
Upper respiratory infection
Low white blood cell count. (This can put you at increased risk for infection.)
Proteinuria (see kidney problems)
Nose bleed (see bleeding problems)
Diarrhea
Hair loss
Mouth sores
Headache


These side effects are less common side effects (occurring in about 10-29%) of patients receiving avastin:

Shortness of breath
Dizziness
High blood pressure
Weight loss
Muscle aches and pains
[> [> [> Subject: :(


Author:
Cliff
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Date Posted: 03:34:36 01/07/06 Sat
I'm sorry to hear that the news wasn't better. I was hoping those navel beans would do the trick. I'm glad to see that you still have a positive attitude, though!
[> [> [> [> Subject: THANKS


Author:
Stacy
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Date Posted: 22:59:16 01/07/06 Sat
Thanks, Cliff. Well, I've said all along that it doesn't matter what I'm given, I plan on being here. I just hope God's will is the same as my will.

What a birthday present, huh?!?!?! At least Mom will be well enough for our traditional family birthday dinners. We always go for steamed crab on everyone's birthdays. So, crabs it will be on Tuesday. Yummy!!
[> [> [> [> [> Subject: Crabs on Tuesday?


Author:
Cliff
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Date Posted: 00:23:18 01/09/06 Mon
Crabs for you birthday.... Are you going to save me some??????? Wouldn't it be great if crabs contained powerful anti-cancer chemicals?? That would be the ultimate in chemotherapy! (And maybe oyster shooters would cure the common cold!)

By the way, since it's the new year--I'm still planning to take you to dinner and a car cruise, and I don't want to hear any excuses this year!
[> Subject: Keep up the fight,


Author:
Jody Kindhart
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Date Posted: 00:09:08 01/08/06 Sun
Hey Stacy It was good seeing you at the Christmas Party, You really good, just keep fighting you can beat this thing or at least hold it back for a long time,

Jody
[> Subject: Results


Author:
Jenn
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Date Posted: 18:52:56 01/12/06 Thu
Hey there Stacy. So sorry to hear about the results. Stay Strong you can beat this! Our thoughts & Prayers are with you always!
P.S.
Happy Birthday. I didn't forget just haven't been on the computer in a while.
Subject: HAPPY BIRTHDAY STACY!


Author:
"BSR"
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Date Posted: 22:27:35 01/10/06 Tue

[> Subject: LOL


Author:
Stacy
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Date Posted: 14:46:08 01/10/06 Tue
THANK YOU!! And thanks for the most flattering picture of myself. LOL!
[> [> Subject: Happy Birthday, Stacy!!!!


Author:
Cliff
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Date Posted: 22:27:35 01/10/06 Tue
Happy Birthday to you!
Happy Birthday to you!
Happy Birthday, dear Stacy
Happy Birthda to you!

You could almost hear me singing, huh? How were the crabs? Did you save me any?
[> Subject: Happy ...Happy Bday!!!!!!!


Author:
Guido
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Date Posted: 20:47:07 01/10/06 Tue
Subject: HAPPY BIRTHDAY !


Author:
Donna
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Date Posted: 14:44:30 01/10/06 Tue
Happy Birthday Stacy!!! Hope you have a GREAT day!
.............But wait a minute... I don't think you're 40 yet... I'm still 30 something.... and I know you're much younger than I am. :)
[> Subject: THANK YOU


Author:
Stacy
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Date Posted: 14:44:30 01/10/06 Tue
I like the way you think!!!
Subject: CT results


Author:
Terri
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Date Posted: 20:43:14 01/09/06 Mon
Stacy,

So sorry to hear about the latest scan results. No matter what gets thrown at you, you must keep throwing it back, don't you! I will continue to keep you in my thoughts.

The kitties are darling. How many "children" does that make now?

Glad to hear that Barbara is doing better. I know that was scary for you as well as her.

Love to all the family back "home".

Terri
Subject: LATEST ADDITIONS


Author:
Stacy
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Date Posted: 19:47:58 01/09/06 Mon
LATEST ADDITIONS TO THE FAMILY


DUTCHESS AND ME


TULOUSE AND DUTCHESS



TULOUSE


[> Subject: CT SCAN


Author:
NORMA
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Date Posted: 12:27:04 01/09/06 Mon
STACY, WE ARE SO SORRY YOU ARE STILL HAVING SO MUCH TROUBLE. I KEEP YOU IN MY PRAYERS EVERY DAY. SORRY BARBARA IS ALSO HAVING PROBLEMS. I KNOW WHAT THAT HEASRT IS ALL ABOUT. I AM DOING SO MUCH BETTER NOW. TELL MOM SHE IS ALSO IN MY PRAYERS. LOVE TO YOU BOTH
[> [> Subject: HI AUNT NORMA


Author:
Stacy
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Date Posted: 19:47:58 01/09/06 Mon
I am so glad to hear you're feeling better!! I appreciate all the prayers, I certainly need them.

I received the oranges and grapefruit today. Yummy!! Take care, I love you.
Subject: MOM


Author:
Stacy
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Date Posted: 09:38:41 01/08/06 Sun
Please keep my Mom in your prayers. She went to St. Joe's ER this afternoon with chest pains. The admitted her this evening and will do a heart catheterization tomorrow.
[> Subject: UPDATE


Author:
Stacy
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Date Posted: 21:00:11 01/06/06 Fri
Mom had her stress test today. As of 8:00pm tonight she did NOT know the results of the scan nor did the doctor come in to talk to her. So, she will be staying again tonight. Without the results we still do not know if she will have a catheter.
[> [> Subject: UPDATE


Author:
Stacy
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Date Posted: 14:14:50 01/07/06 Sat
I just took Mom home. The results were perfectly normal so no stress test. She sees her doctor in early February just for a follow up. Her potassium was a little low so that may have had something to do with her pain but the doctor thinks it's mostly stress. She's just happy to be home.
[> [> [> Subject: OOPS


Author:
Stacy
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Date Posted: 09:38:41 01/08/06 Sun
Mom DID have a STRESS TEST. I meant to say she doesn't have to have a catheter.

Mom said this morning that it was wonderful sleeping in her own bed. She got lots of rest last night and was very happy to say that Annie, her Pug, slept with her all night.
Subject: hey chickie


Author:
Bonnie
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Date Posted: 00:18:52 01/08/06 Sun
Hey chickie,

Let's get some pizza from Great American...then all will be well. I hope Barb is Okay...I had no idea...

You are an awesome person and quite the fighter..hang in there.
I want to see the kittens. Sebastain misses his sleeping buddy Emma and so do I.

See ya soon

Bon
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