VoyForums
[ Show ]
Support VoyForums
[ Shrink ]
VoyForums Announcement: Programming and providing support for this service has been a labor of love since 1997. We are one of the few services online who values our users' privacy, and have never sold your information. We have even fought hard to defend your privacy in legal cases; however, we've done it with almost no financial support -- paying out of pocket to continue providing the service. Due to the issues imposed on us by advertisers, we also stopped hosting most ads on the forums many years ago. We hope you appreciate our efforts.

Show your support by donating any amount. (Note: We are still technically a for-profit company, so your contribution is not tax-deductible.) PayPal Acct: Feedback:

Donate to VoyForums (PayPal):


Monday, June 17, 13:54:42Login ] [ Main index ] [ Post a new message ] [ Search | Check update time | Archives: [1]234567 ]
Subject: BUMMER


Author:
Stacy
[ Next Thread | Previous Thread | Next Message | Previous Message ]
Date Posted: 21:28:07 09/22/06 Fri
In reply to: Lisa 's message, "Scans" on 11:52:31 09/21/06 Thu

Oh Lisa! I am so sorry to hear that! Where did the PET show new spots? Keep your strength and faith in Jesus. He's helped you before, he'll help you again! I'll keep you in my prayers and pray harder.

[ Next Thread | Previous Thread | Next Message | Previous Message ]

Replies:
[> [> [> [> [> Subject: Yeah, It's bummer for sure


Author:
Lisa
[ Edit | View ]

Date Posted: 09:09:04 09/24/06 Sun

The bone scan showed a spot on the skull and the PET/CT scan showed (from what I remember) 2 spots, one large one seemed to be in the liver area which IS a common spot for mets. Hopefully I can have surgery to get it out if it's cancerous. There looked to be something going on with the kidneys too. I'll take kidney stones if I have a choice. I just have to keep reminding myself that it's a PET/CT scan and the CT will show non-cancerous conditions too. But when the chemo nurse called me on Friday and said I was off this week's schedule until Dr Evans had a chance to talk to me, I got scared. Plus the term "whole new ball game" was mentioned. UGH!
[> [> [> [> [> [> Subject: KEEP YOUR CHIN UP


Author:
Stacy
[ Edit | View ]

Date Posted: 20:24:45 09/27/06 Wed

Lisa's update:

Hello All.

We just found out today that my cancer wasn't gone completely as we had hoped in June. Breast Cancer primarily targets the breast, bone, brain, and liver and although, we eradicated a lot of the weaker cancer early on, I now have new cancer in a few vertebrae, a small spot on my right pelvis, 2 small spots in my liver and a few swollen paratracheal lymph nodes (they're located in the chest alongside the trachea). My tumor marker started to go back up last month so I had a suspicion that something was going on. Guess I was right.

My new chemo regimen starts on Monday 10/2 and will now be 1 treatment every other week. I will be given 2 chemo drugs called Gemzar and Taxotere along with a bone treatment called Zometa. I have at least 8 treatments ahead and will be getting another PET/CT scan in 3 months to see how well the chemo drugs are working. My oncologist assured me that she has seen promising results with these drugs and I'm hoping she is right. Lisa


Lisa, maybe you can have radiation to the skull and spine? I took Gemzar (aka Gemcitabine) for quite a while. There weren't hardly any side effects for me. Hopefully it will agree with you also.

I also have had Taxotere. I did have side effects with it. It has a tendency to make you lose your nails. It looks like they are turning white in the nail bed but what is actually happening, your nails are lifting off of it. My nurse suggested "tea tree oil" for it. I went right out and got it and IT WORKED!! I didn't lose any nails. Just use a q-tip and put it on the nails and under your nails. The stuff stinks but it's worth it.

Like Taxol, it can cause numbing and tingling in the fingers and hands but for me it wasn't as bad as Taxol. Taxol and Taxotere are "cousins", they are very similar but they are preserved differently.

What did you end up finding out about your kidneys?

[> [> [> [> [> [> [> Subject: Kicking Cancer's Ass once again


Author:
Lisa
[ Edit | View ]

Date Posted: 10:59:12 09/29/06 Fri

Well, I was wrong about the kidneys, nothing there. And I asked about the spot on my head, my oncologist look at the bone scan report and said they "weren't impressed" by anything they saw and chucked the report aside - I laughed. The bone cancer actually showed up on the PET/CT scan, not the bone scan so I'm hoping that's a good sign meaning it's still in it's early stage. I don't have any serious bone pain, just a little ache in my back and hip where it is so I guess that's a good sign too. I was wondering about that ache before the scans, well now I know what's causing it and if it goes away, then I'll know the chemo's working.

No radiation yet. I think she wants to see how the chemo works first. I think my Onc said it'll destroy too many of the good cells I have left and I need them to get through treatment. I'm already scraping the basement floor on my counts and a blood transfusion might be needed to keep me on scheudule. I even stopped drinking beer to preserve what cells I have left. I'm not taking any chances at this point.

Here's where I stand right now on my counts as of 9/25:

WBC 2.9
RBC 2.63
HGB 9.3 (OEP really helped me keep this level up)
HCT 28.4
MCV 108.2
MCH 35.3
MCHC 32.6
Platelets 117

My Onc said that Gemzar and Taxotere are good drugs by themselves but when taken together they have a synergistic effect and work even better. How it'll go (and I have my treatments laid out in my journal) is 1 treatmnet with be Gemzar and Zometa, then it'll be Gamzar and Taxotere, then it'll repeat - G/Z then G/T. Sounds like Zometa also can have an effect on the bone cancer cells too. Thanks for the info on the taxotere. I had Taxol the first time, now I can appriciate what it's like when older folks have arthritis in the legs - whoowee. I thank the person who created Percosets! And the balls of my feet went numb, that's a real treat too.

Did the Gemzar have any positive effects on your cancer? Where to you still have spots left? Now I know what you meant about your PET's being good and bad at the same time.
So, I got rid of the scattered cancer and not it's just stuck in a few places. Good thing is that breast cancer is breast cancer no matter where it lands and there are plenty of drugs out there to get it. So, I look at the bright side - I'd rather have BC in the liver, then liver cancer itself (that's incurable) and from what I read, the bones can be treated too if caught early. My Onc also agreed that although this recent scan wasn't exactly stellar, it was still better than my original in March and the new cancer spots are only 3 months old if that.

Funny you mentioned about the tea tree oil. I use that a lot along with my oxygen elements plus - that OEP is great for not only keeping your blood counts up, but heals boo-boos in record time. Good for us with low WBC counts.



Forum timezone: GMT-5
VF Version: 3.00b, ConfDB:
Before posting please read our privacy policy.
VoyForums(tm) is a Free Service from Voyager Info-Systems.
Copyright © 1998-2019 Voyager Info-Systems. All Rights Reserved.