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Date Posted: 09:07:12 05/19/07 Sat
Author: Karen (frustrated)
Subject: Weight loss on steriods

Hi all! I have been on medrol for almost a year now for a rare lung disease called BOOP (Bronchiolitis Obliterans Organizing Pneumonia). It has come to the point where I don't think the steriods are doing anything to help my lungs. I am pretty sure that the organizing pnuemonia part is gone and I am left with the bronchiolitis obliterans which is just a fancy name for small airway disease. I am sure there is damage and scarring in my small airways. With that being said, I have been trying to reduce the steriods since January with the help of my doctor. I am down to 8 mg of medrol from 24mg. Medrol is a little stronger than prednisone so 4mg of Medrol = 5 mg of Prednisone. Still a steriod and still horrible! I was just wondering if any of you have heard of someone losing weight while taking steriods. In Feb. of 2006 I weighed 88lbs. I am a very petite woman. Today, after almost a year I only weigh 62 lbs. That is up from 57lbs in Nov. 2006. I of course have all the other side effects: osteoporosis, blood sugar issues, muscle wasting, severe anxiety, tendonitis, pulled muscles, hair loss, moon face (which has gone away now that I am down to 8mg). These steriods have wrecked my body. I just can't figure why I have no appetite and weight loss. Not that I want to be heavy, but it seems that I should be able to gain some weight. Now that I am reducing, I get really nauseated and have a worse appetite. Any suggestions. Thanks! Karen

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