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Subject: Talking about dyslexia


Author:
Rodney
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Date Posted: 14:47:48 03/25/09 Wed

Quick background on me first, I am 42 and dyslexic and have unfortunately passed it on to my daughter.(she likes to remind me of this)

I can talk about my daughters dyslexia with other people without any problem but when it comes to talking about me I cant do it, even with my own family. Even just typing this on here is making me feel uncomfortable.

Is there anyone out there that has some advise on how to start a converstation on something like dyslexia. I would like to be able to tell everyone at work and make them understand more about it. it would help alot with them understanding why I have problems with some things (paperwork yuck)

I think there are couple of things making it harder for me, there is one persion at work that would have a hard time understanding something like this and would just think of me as stupid, also I suffer from a social anxiety disorder which makes talking to people that much harder.

It is sad to see that there is so little support for Adults with Dyslexia it was great finding this site.

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Replies:
[> Subject: Re: Talking about dyslexia


Author:
Caroline MacFarlane (Sitting on the fence as ever)
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Date Posted: 02:31:54 03/31/09 Tue

Hi I fund myself in the same situation. I am a 36 year old mother of 2 dyslexic children, my husband is dyslexic and i was diagnosed about 3 years ago. I found it difficult to talk about myself at first. However i am lucky enough to work with teenagers as well as under 5's. There are many children who come through me that are clearly dyslexic, either diagnosed or undiagnosed and slipping through the system. One day i had a wee boy about 9 years old (Although ut f my age range the school were desperate). This boy was clearly suffering through his dyslexia. He didn't want to tell anyone incase his friends found out and bullied him.
I told this wee boy that i was dyslexic myself and that i knew exactly how he felt. He and i burst into tears. What a relief that boy felt and i seemed to lift the weight of the world off his shoulders. Surprisingly enough it was the same for me. That conversation opened the flood gates. I tell anyone that i think needs to know especially, youngsters as they see they are not the only one and that higher education does not need to escape them. You'll know when the time and person is right for you and it will become easy from then on. Hope this helps!
[> Subject: Re: Talking about dyslexia


Author:
julie monahan
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Date Posted: 00:58:22 04/08/09 Wed

It was a god-send to me, when i got pregnant at 35 and stopped working at 8 months, and have never really gone back to the work force, because i sucked at it! I'm not lazy, i'm very clean and for about the last 10 years have been pretty organized in my life. Thank god my husband is the bread winner and we only have our 1 child. We would like to buy our first home but cant afford to do it on 1 salary. I would like to earn money, but can really only make a minimal amount of & because it takes me years to feel good and comfortable at my jobs because o all of my dyslexic problems. Over the years though i have been able to become more comfortable EXPLAINING MYSELF TO PEOPLE ABOUT MY PROBLEM. Even the smart jerks who think and talk too fast for me. I was extreamly shy my entire life, until around 30. I still suffer from a lot anxiety, but found lots of help in THE SELF HELP SECTION OF THE LIBRARY. And some counseling, the very little that i could afford. I soak-up every little good positive bit of info that I can to make myself feel good and strong and self assured. I used to go to the bathroom at work, lock the door, cry in silence, flush the toilet then wash my face a little(cant rub off make-up) look at myself in the mirror, SMILE and give myself a pep-talk about all the good things that i was capable of doing. GIVE YOURSELF POSITIVE AFFIRMATIONS, WHILE SMILLING AND LOOKING AT YOURSELF IN THE MIRROR! It really does start to help you stand up for yourself and feel good and worthy and smart and needed and pretty. Take deep breaths and go to your HAPPY PLACE IN YOUR MIND. You have to get to a place where you start to crawl towards feeling goog about yourself and strrong before you can coax yourself into selling yourself the idea that YES YOU CAN TELL OTHER PEOPLE about your problem. Start with the people that you feel close to and comfortable, even if it means talking out loud to yourself at home in your own privacy or to the cat or dog or small child. Start practing on them. Like NIKE says (JUST DO IT)
[> Subject: Re: Talking about dyslexia


Author:
Tammy Kendall
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Date Posted: 12:39:57 04/08/09 Wed

hello there... a response to you...well for me I am 46. I have just ended the most wonderful relationship of my life because of the ongoing issues that people like us have. I have problems with being consistant in my "stories I tell" meaning I only tell part of the story and the rest later and I became a "Liar" in my partners eyes. I had problems with high level day to day communication like someone who had ADD and could not provide the necessary comminucation level that was necessary for a realtionship. I am great with the detailed level of relationship but not the high level. I am an engineer...very smart high IQ but graduated with a 2.2 in school but went on to be very sucessful in all that do once I got out of the school system with my 2 engineering degrees. It is very sad and I need to finally get help to fix this problem in my brain becuase I simply cannot take it anymore. I have very many of the traits listed for dyslexia and need to find a way to fix me if that is possible.
[> Subject: Re: Talking about dyslexia


Author:
Beth Zimmerman (new at dyslexia)
[ Edit | View ]

Date Posted: 09:47:30 04/18/09 Sat

Hi there, I read your message and really empathize with you. I am fortunate in that I am not dyslexic, but my 9 year old daughter has just been diagnosed with it. I haven't told her she is "dyslexic" yet. I don't want her to feel labeled, different or be afraid she has a disease. But i have no problem telling friends, family or colleagues about it. Maybe i can help you...First of all, really only tell those who will be of support to you. If there is someone in your workplace who is not supportive of you in general, telling him or her this information won't be helpful to you. I am fortunate in that I work for a social services organization that serves children, so everyone in my workplace was very supportive when I told them. However, one of my close "friends" told me that my daugter has a chemical imbalance and psychological "defect" and told me I shouldn't be frustrated with the public school system that refused to test her. Therefore, she and I aren't speaking right now until she learns more about learning differences! So far as family, they are family...Typical responses in my case-sympathetic, but get over it. So, I think in general you can expect people to respond to your telling them this news in the way they would normally respond to you. You would probably be best served telling a small number of friends who are very supportive of you in general, and then as you gain confidence, tell others. Now, a question for you, how did you tell your daughter about this? What age was she when diagnosed? Thanks!
A friend in Texas
[> Subject: Re: Talking about dyslexia


Author:
Liz
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Date Posted: 06:09:15 07/14/09 Tue

Hi Rodney, my husband and I are both dyslexic, and we are pretty sure our seven year old daughter is too, we are watching her like hawk. I think be open with it. When people pull me up on my spelling and grammar, I tell them straight out to be patient with me, I'm dyslexic. It seems that dyslexics are quite often extemelly smart and creative people, so we compinsate in other areas. Just think of Richard Branson from Virgin, and Tom Cruise.
[> Subject: Re: Talking about dyslexia


Author:
John (Socrates)
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Date Posted: 21:55:08 07/14/09 Tue

"Richard Branson from Virgin, and Tom Cruise". Let's get real. Now Socrates needs a good close look. Definitively smart. In fact, he's the yardstick for all great thinkers.

What do you reckon? [Aussie speak.] The Bastard never wrote ANYTHING! Welcome to the club, Socrates.

Hide this comment from all teenagers who have to do homework (ha ha).
[> Subject: Re: Talking about dyslexia


Author:
Lyn (i understand)
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Date Posted: 17:25:36 01/04/10 Mon

Iam a mum and have dexlia as well iam now 54 and have 2 children with it that i passed on to them. i have lived through you are going through how i understand both parts having it and been a mun with children with it and all you go though.Last yr i worte a book about my life so far and in it i talk about my childhood and as a mum and the effects it had on my husband perents who helped me the help i got and didnot get all my life it is not the only things i talk about but i share many things as well but dexelia has been with me all my life so it has affected it for goood and bad. i wort the book as a thank for all the good i recived.throught my life so far.you have to belive that u are just as good as those who do not have to walk the walk you are because of dexlia.and the lack of understanding you have faced and do face in this moden world where reading and writing plays such a maiger part in the way we live. as u know there are other parts that are involved in beeing dexlia..as a mum being there for my childern was most inportant for me and them.we now every close.but wlking through the judgments that came and do come all my life. e.g. your not trying.ect.and i had to learn not to hate my self for passing it on to my childern and all that happend to them for as a parent we never what are children to know the pain we have we what life to bee peter for them and to injoy been alive.and injoy finding out who they are.everyone is diffrent to each other in many ways e.g.tall short and in between thats just one example of the diffrentance between people. i all so wish people to understand us dexlia and the diffrents that we have and even from each other. my life story i hop will let people see what happend to me just as an example of one persons life of living S DEXLIA and how its affected some of whaats happened in my live because of it. people know more off how to help now days which is so grate. and they sill learning more off how to help children like us that we did have.



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