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Date Posted: 14:44:21 06/19/02 Wed
Author: Connie
Subject: Re: Here is my story ...
In reply to: Kris in TN 's message, "Here is my story ..." on 09:10:38 06/19/02 Wed

Hi Kris & Liann,

It's exciting to meet you two! My son Jonathan (who will be 10 in July) was diagnosed with ADHD and Aspeger's Syndrome just before his 6th birthday.

Most of our struggles are not with his ADHD but rather with his autistic tendencies. He tends to believe that he is the only one on the planet and is usually only interested in doing what pleases him at the moment -- regardless of what that does to everyone else. He is also a very angry child. His past psychologist (we just moved and have to find a new one)has said that is typical. He's spent a long time being frustrated and not understanding why he is different, but believe that he is normal and there is something wrong with the world. Then he starts to realize that he is "not normal" and he gets angry because he doesn't understand.

He also can be VERY imature. If he is thirsty and can't get a drink right away, he becomes hysterical. Same thing if he is hungry, tired, hot, etc. He has to have his physical needs met immediately or he pitches a fit.

We tried him on several different medications soon after his diagnosis. We started with Tofranil, but that didn't do anything. Then we tried him on zoloft, but that made him violent. Then we tried him on adderall but that made him cry all day.

We didn't try any other medication, but had heard about the Feingold Diet and also our neuropsychologist recommended it. We did it for a couple of years and we did see improvement. It's not dramtic improvement, but it is improvement.

The problem is that it is very hard to stick to. One little infraction, can cause him to be wild for several days.

We eventually went off of it for about two years, but then last September, started on it again. Basically, the Feingold diet just "takes the edge off".

In asnwer to your questions, Liann, I did join the group back several years ago. Then send you TONS of helpful information and food guides. Once you're a memeber, you're a memeber for life, so when we came back to it, I only had to order a current food list.

It really is'nt that difficult once you get used to it. You can find most everything at most grocery stores.

Our family does not follow it exactly - there are many food that my son doesn't like anyway so I still make those and just make something else for him.

There is a group through Yahoogroups for the Feingold Diet, but I didn't find it to be that helpful, but maybe you would.

Right now, Jonathan is on prozac. He had gotten quite aggressive around December and he was put on prozac. He was a different child for about three months, but since then has regressed again. We probably need to increase his dosage, but since we moved across country three months ago, we have not found a psychologist to help us do this. His last psychologist said that we would probably have to increase his dosage after a few months.

It's hard to find a doctor who knows enough about Asperger's Syndrome to treat it, but we're working on finding one.

As far as homeschooling goes.... I have used Abeka and Konos in the past. I liked Konos, but it required too muchp preparation on my part -- it also was too loose for me -- I like something more spelled out for me. As far as Abeka goes -- I LOVED it - Jonathan HATED it!

This fall, we're doing Patchwork Primers and also doing Math U See along with it.

Boy, did I just talk your ear off or what? I'm just so excited to have met you ladies who are in similar situations.

Do you all have other children besides your ADHD boys? I also have an almost 7 year old daughter.

Take care,
Connie

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